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Mapping Rare Launch Webinar

1 March @ 2:00 PM - 3:00 PM UTC+1

This Rare Disease Day, join us for the launch of Mapping Rare, an interactive project to showcase the achievements of our global community. The map will be launched on our website on 29 February, followed by a webinar on 1 March to introduce the project, including a Q & A with the participants.

What is Mapping Rare ?

  • a multimedia infographic project which will serve as a benchmark for RDI and rare disease community actions, past and present, and illustrate how our members drive change at the global, regional and national levels
  • a visual representation of the accomplishments of the rare disease community and the future milestones that we hope to achieve as a united movement joining efforts towards the common goal of improving the lives of PLWRD
  • a tool to educate the public about rare diseases and the challenges PLWRD face in accessing diagnosis, treatment and care, along with potential community-driven solutions
Register Here


1 March
2:00 PM - 3:00 PM UTC+1
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