BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//CoNGO - ECPv6.15.13//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://ngocongo.org
X-WR-CALDESC:Events for CoNGO
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:Europe/Paris
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20230326T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20231029T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20240331T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20241027T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20250330T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20251026T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20240301T140000
DTEND;TZID=Europe/Paris:20240301T150000
DTSTAMP:20261025T180317
CREATED:20240130T200703Z
LAST-MODIFIED:20240130T201955Z
UID:10002379-1709301600-1709305200@ngocongo.org
SUMMARY:Mapping Rare Launch Webinar
DESCRIPTION:This Rare Disease Day\, join us for the launch of Mapping Rare\, an interactive project to showcase the achievements of our global community. The map will be launched on our website on 29 February\, followed by a webinar on 1 March to introduce the project\, including a Q & A with the participants. \n \nWhat is Mapping Rare ? \n\na multimedia infographic project which will serve as a benchmark for RDI and rare disease community actions\, past and present\, and illustrate how our members drive change at the global\, regional and national levels\na visual representation of the accomplishments of the rare disease community and the future milestones that we hope to achieve as a united movement joining efforts towards the common goal of improving the lives of PLWRD\na tool to educate the public about rare diseases and the challenges PLWRD face in accessing diagnosis\, treatment and care\, along with potential community-driven solutions\n\nRegister Here
URL:https://ngocongo.org/event/mapping-rare-launch-webinar/
CATEGORIES:CoNGO Recommended Events,CSO event
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240301T200000
DTEND;TZID=America/New_York:20240301T211500
DTSTAMP:20261025T180317
CREATED:20240224T201850Z
LAST-MODIFIED:20240224T202003Z
UID:10002398-1709323200-1709327700@ngocongo.org
SUMMARY:Mapping Rare
DESCRIPTION:This Rare Disease Day\, we are thrilled to invite you to the launch of Mapping Rare\, an exciting and interactive project designed to spotlight the remarkable achievements of our global rare disease community. \nJoin us for a webinar on 1 March to introduce the project\, featuring a panel discussion with participants and a keynote address from Dr. Roberto Giugliani\, MD\, PhD\, Professor of the Department of Genetics of the Federal University of Rio Grande do Sul (UFRGS) and Co-Founder of Casa dos Raros\, Porto Alegre\, Brazil. \nRegister Now \nEvent Details: \nDate: Friday\, 1 March\nTime: 14:00 – 15:15 CET\nRegistration Link \n  \nWhat is Mapping Rare? \n\na multimedia project which will serve as a benchmark for RDI and rare disease community actions\, past and present\, and illustrate how our members drive change at the global\, regional and national levels\na visual representation of the accomplishments of the rare disease community and the future milestones that we hope to achieve as a united movement joining efforts towards the common goal of improving the lives of PLWRD\na tool to educate the public about rare diseases and the challenges PLWRD face in accessing diagnosis\, treatment and care\, along with potential community-driven solutions\n\n 
URL:https://ngocongo.org/event/mapping-rare/
CATEGORIES:CoNGO Recommended Events,CSO event
END:VEVENT
END:VCALENDAR