discrimination

Call for a UN Resolution on Persons Living with a Rare Disease and their Families

The global rare disease community is calling for a UN Resolution Addressing the Needs of Persons and Families Living with a Rare Disease (PLWRD).

Over 300 million people worldwide live with one of over 6,000 identified rare diseases. Rare diseases are often chronic, complex, disabling and life threatening. Persons and families living with a rare disease confront a lack of public awareness as well as a paucity of expertise and knowledge of rare diseases, exposing them to greater social, health and economic vulnerability.

To ensure the well-being of persons living with a rare disease, RDI in partnership with EURORDIS and the NGO Committee for Rare Diseases, is a calling a UN Resolution that recognizes the complex needs of persons living with a rare diseases and promotes the human rights and full participation in society of all people.

Register here!

Preliminary Agenda:

  • Welcome from Rare Diseases International
  • Official Rare Disease Day 2021 Video
  • Opening Remarks from the NGO Committee for Rare Diseases
  • Call for a UNGA Resolution on Rare Diseases
  • Testimonies from Person’s Living with a Rare Disease around the world
  • Video – Rare Diseases at the United Nations
  • Panel Discussion: “Why a UN Resolution and Why Now”
  • Message from International Rare Disease Champion
  • UN Member States Support
  • Key take home message and next steps

Key Asks for the UN Resolution on Rare Diseases would include:

1. Inclusion and participation of PLWRD & their families in society and respect of their human rights

2. Improvement of health and social outcomes with the appropriate care and support within existing resources

3. Promotion of national strategies and actions

4. Introduction of rare diseases into UN agencies and programmes

5. Regular reports by the UN Secretariat to monitor the progress on the implementation.

_____________________________________________________________________________________________

CoNGO Notes: For more information on the NGO Committee for Rare Diseases, please visit ngocommitteerarediseases.org. For more information on the NGO Committee on the Rights of Indigenous Peoples, please visit facebook.com/NGOCoRIP. For more information on the NGO Committee on Social Development, please visit ngosocdev.org.

Call for a UN Resolution on Persons Living with a Rare Disease and their Families

The global rare disease community is calling for a UN Resolution Addressing the Needs of Persons and Families Living with a Rare Disease (PLWRD).

Over 300 million people worldwide live with one of over 6,000 identified rare diseases. Rare diseases are often chronic, complex, disabling and life threatening. Persons and families living with a rare disease confront a lack of public awareness as well as a paucity of expertise and knowledge of rare diseases, exposing them to greater social, health and economic vulnerability.

To ensure the well-being of persons living with a rare disease, RDI in partnership with EURORDIS and the NGO Committee for Rare Diseases, is a calling a UN Resolution that recognizes the complex needs of persons living with a rare diseases and promotes the human rights and full participation in society of all people.

Register here!

Preliminary Agenda:

  • Welcome from Rare Diseases International
  • Official Rare Disease Day 2021 Video
  • Opening Remarks from the NGO Committee for Rare Diseases
  • Call for a UNGA Resolution on Rare Diseases
  • Testimonies from Person’s Living with a Rare Disease around the world
  • Video – Rare Diseases at the United Nations
  • Panel Discussion: “Why a UN Resolution and Why Now”
  • Message from International Rare Disease Champion
  • UN Member States Support
  • Key take home message and next steps

Key Asks for the UN Resolution on Rare Diseases would include:

1. Inclusion and participation of PLWRD & their families in society and respect of their human rights

2. Improvement of health and social outcomes with the appropriate care and support within existing resources

3. Promotion of national strategies and actions

4. Introduction of rare diseases into UN agencies and programmes

5. Regular reports by the UN Secretariat to monitor the progress on the implementation.

_____________________________________________________________________________________________

CoNGO Notes: For more information on the NGO Committee for Rare Diseases, please visit ngocommitteerarediseases.org. For more information on the NGO Committee on the Rights of Indigenous Peoples, please visit facebook.com/NGOCoRIP. For more information on the NGO Committee on Social Development, please visit ngosocdev.org.

NGO Committee on the Rights of Indigenous Peoples [monthly meeting]

The monthly meeting of the NGO Committee on the Rights of Indigenous Peoples will convene on February 18 from 1:00 – 3:00pm EST. Interested parties and civil society partners are welcome to join.

Agenda:

1. Moment of Silence in Honor of the Lands we are on and the Native Peoples of this land

2. Welcome and Introductions

3. Approval of Agenda

4. Minutes – January 21, 2021 meeting

5. Executive Committee Report

6. Treasurer Report – Dues for 2021

7. Film – Conscience Point

8. Other announcements

Please RSVP – The ZOOM link will be sent out the night before the meeting.

_____________________________________________________________________________________________

CoNGO Notes: For more information on the NGO Committee on the Rights of Indigenous Peoples, please visit facebook.com/NGOCoRIP. 

NGO Committee on the Rights of Indigenous Peoples [monthly meeting]

The monthly meeting of the NGO Committee on the Rights of Indigenous Peoples will convene on February 18 from 1:00 – 3:00pm EST. Interested parties and civil society partners are welcome to join.

Agenda:

1. Moment of Silence in Honor of the Lands we are on and the Native Peoples of this land

2. Welcome and Introductions

3. Approval of Agenda

4. Minutes – January 21, 2021 meeting

5. Executive Committee Report

6. Treasurer Report – Dues for 2021

7. Film – Conscience Point

8. Other announcements

Please RSVP – The ZOOM link will be sent out the night before the meeting.

_____________________________________________________________________________________________

CoNGO Notes: For more information on the NGO Committee on the Rights of Indigenous Peoples, please visit facebook.com/NGOCoRIP. 

COVID-19 and Older People: A Rights-based Approach to Palliative Care

COVID-19 and Older People: A Rights-Based Approach to Palliative Care

Register for the event here: https://zoom.us/meeting/register/tJErdemsrjouEtSyYSHLNE4mx6BJHHsdHXb9

The COVID-19 pandemic has significantly disrupted the provision of many health services on the global scale. Within this IFA Virtual Town Hall, Dr. Katherine Pettus, Advocacy Officer with the International Association for Hospice and Palliative Care, explores some of the challenges and opportunities of providing palliative care for patients in these extraordinary times.

Opening Remarks: Dr. Katherine Pettus, Advocacy Officer for Palliative Care, International Association for Hospice and Palliative Care

__________________________________________________________________________________________

CoNGO Notes: For more information on the NGO Committee on Ageing-NY, please visit ngocoa-ny.org. For more information on the NGO Committee on Ageing-Geneva, please visit ageingcommitteegeneva.org. For more information on the NGO Committee on Ageing-Vienna, please visit ngoageingvie.org. For more information on the NGO Committee on Intergenerational Solidarity, email the vice chair at susanneseperson@gmail.com.

COVID-19 and Older People: A Rights-based Approach to Palliative Care

COVID-19 and Older People: A Rights-Based Approach to Palliative Care

Register for the event here: https://zoom.us/meeting/register/tJErdemsrjouEtSyYSHLNE4mx6BJHHsdHXb9

The COVID-19 pandemic has significantly disrupted the provision of many health services on the global scale. Within this IFA Virtual Town Hall, Dr. Katherine Pettus, Advocacy Officer with the International Association for Hospice and Palliative Care, explores some of the challenges and opportunities of providing palliative care for patients in these extraordinary times.

Opening Remarks: Dr. Katherine Pettus, Advocacy Officer for Palliative Care, International Association for Hospice and Palliative Care

__________________________________________________________________________________________

CoNGO Notes: For more information on the NGO Committee on Ageing-NY, please visit ngocoa-ny.org. For more information on the NGO Committee on Ageing-Geneva, please visit ageingcommitteegeneva.org. For more information on the NGO Committee on Ageing-Vienna, please visit ngoageingvie.org. For more information on the NGO Committee on Intergenerational Solidarity, email the vice chair at susanneseperson@gmail.com.

NGO CSW-NY Youth Leaders & Young Professionals Launch Event

Come learn how young people can engage in the gender equality discourse during 2021!

NGO CSW/NY has recently revamped our Youth Leaders & Young Professionals (YLYPs) Program. To introduce our new program, we’re hosting a launch event to inform and prepare for youth engagement in the NGO CSW65 Forum and the Generation Equality Forum. Come ready to share your ideas and how NGO CSW can support your work in 2021.

Register here!

__________________________________________________________________________________________

CoNGO Notes: For more information on the NGO Committee on the Status of Women-Vienna, please visit ngocswvienna.org. For more information on the NGO Committee on the Status of Women-Geneva, please visit ngocsw-geneva.ch.

NGO CSW-NY Youth Leaders & Young Professionals Launch Event

Come learn how young people can engage in the gender equality discourse during 2021!

NGO CSW/NY has recently revamped our Youth Leaders & Young Professionals (YLYPs) Program. To introduce our new program, we’re hosting a launch event to inform and prepare for youth engagement in the NGO CSW65 Forum and the Generation Equality Forum. Come ready to share your ideas and how NGO CSW can support your work in 2021.

Register here!

__________________________________________________________________________________________

CoNGO Notes: For more information on the NGO Committee on the Status of Women-Vienna, please visit ngocswvienna.org. For more information on the NGO Committee on the Status of Women-Geneva, please visit ngocsw-geneva.ch.

2021: A Defining Year for Accelerating Gender Equality, Equity and Justice (7th Annual Symposium on the Role of Religion in International Affairs)

REGISTRATION IS GROWING. REGISTER NOW TO RESERVE SPACE: https://bit.ly/34ir0Tx

Please join us for the 7th Annual Symposium on the Role of Religion and Faith-Based Organizations in International Affairs.

2021 Theme: “2021: A Defining Year for Accelerating Gender Equality, Equity and Justice.”

Tuesday, 26 January 2021

8:00 am – 12:30 pm (New York)
2:00 pm – 6:30 pm (Geneva)
8:00 pm – 12:30 am (Bangkok)
10:00 pm – 02:30 am (Seoul)
12:00 am – 4:30 am (Sydney)

The Symposium will focus on overcoming pervasive gender inequalities and discrimination as an essential contribution to reshaping the world as we recover and rebuild from the COVID-19 pandemic and to achieving sustainable peace and development. It will explore how faith actors and institutions can work in tandem with governments, the United Nations, and broader civil society to accelerate the pace towards gender equality, equity and justice, presenting directions based on innovative approaches. The Symposium will not shy away from honest appraisal of both the contributions of faith actors to this agenda as well as pointing to where and how they are hindering progress, but will primarily serve as a space to recommit to achieving gender justice, grounded in both faith values and universal human rights, and as part of our commitment to begin a more critical understanding of race, post-colonialism and intersectionality within international development discourse and practice.

Those gathered online will focus on overcoming pervasive gender inequalities and discrimination as an essential contribution to reshaping the world as we recover and rebuild from the COVID-19 pandemic. The overarching goal is to provide the opportunity to explore together ways to scale up work for gender justice, and to recommit to achieving it.

Participants will explore how faith actors and institutions can work in tandem with governments, the United Nations, and broader civil society to accelerate the pace towards gender equality, equity and justice.

Symposium is organized by the World Council of Churches, ACT Alliance, General Board of Church and Society of The United Methodist Church, Islamic Relief, Seventh-Day Adventist Church, Soka Gakkai International, United Religions Initiative, and UN Women and the United Nations Population Fund UNFPA, for the United Nations Inter-agency Task Force on Religion and Development.

__________________________________________________________________________________________

CoNGO Notes: For more information on the NGO Committee on the Status of Women-Geneva, please visit ngocsw-geneva.ch. For more information on the NGO Committee on the Status of Women-New York, please visit ngocsw.org. For more information on the NGO Committee on the Status of Women-Vienna, please visit ngocswvienna.org.

2021: A Defining Year for Accelerating Gender Equality, Equity and Justice (7th Annual Symposium on the Role of Religion in International Affairs)

REGISTRATION IS GROWING. REGISTER NOW TO RESERVE SPACE: https://bit.ly/34ir0Tx

Please join us for the 7th Annual Symposium on the Role of Religion and Faith-Based Organizations in International Affairs.

2021 Theme: “2021: A Defining Year for Accelerating Gender Equality, Equity and Justice.”

Tuesday, 26 January 2021

8:00 am – 12:30 pm (New York)
2:00 pm – 6:30 pm (Geneva)
8:00 pm – 12:30 am (Bangkok)
10:00 pm – 02:30 am (Seoul)
12:00 am – 4:30 am (Sydney)

The Symposium will focus on overcoming pervasive gender inequalities and discrimination as an essential contribution to reshaping the world as we recover and rebuild from the COVID-19 pandemic and to achieving sustainable peace and development. It will explore how faith actors and institutions can work in tandem with governments, the United Nations, and broader civil society to accelerate the pace towards gender equality, equity and justice, presenting directions based on innovative approaches. The Symposium will not shy away from honest appraisal of both the contributions of faith actors to this agenda as well as pointing to where and how they are hindering progress, but will primarily serve as a space to recommit to achieving gender justice, grounded in both faith values and universal human rights, and as part of our commitment to begin a more critical understanding of race, post-colonialism and intersectionality within international development discourse and practice.

Those gathered online will focus on overcoming pervasive gender inequalities and discrimination as an essential contribution to reshaping the world as we recover and rebuild from the COVID-19 pandemic. The overarching goal is to provide the opportunity to explore together ways to scale up work for gender justice, and to recommit to achieving it.

Participants will explore how faith actors and institutions can work in tandem with governments, the United Nations, and broader civil society to accelerate the pace towards gender equality, equity and justice.

Symposium is organized by the World Council of Churches, ACT Alliance, General Board of Church and Society of The United Methodist Church, Islamic Relief, Seventh-Day Adventist Church, Soka Gakkai International, United Religions Initiative, and UN Women and the United Nations Population Fund UNFPA, for the United Nations Inter-agency Task Force on Religion and Development.

__________________________________________________________________________________________

CoNGO Notes: For more information on the NGO Committee on the Status of Women-Geneva, please visit ngocsw-geneva.ch. For more information on the NGO Committee on the Status of Women-New York, please visit ngocsw.org. For more information on the NGO Committee on the Status of Women-Vienna, please visit ngocswvienna.org.

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