EURORDIS

This events calendar is an announcement service by CoNGO to its member organizations, its NGO substantive committees, the wider civil society community, and the UN System. All events included here, including their accuracy, are the sole responsibility of their organizers. Unless explicitly indicated, inclusion of an event in this calendar does not constitute CoNGO endorsement of the event.  If you have an event or meeting you want to be considered for announcement here, please email us at infonews@ngocongo.org.

 

 

Call for a UN Resolution on Persons Living with a Rare Disease and their Families

worldwide/virtual

The global rare disease community is calling for a UN Resolution Addressing the Needs of Persons and Families Living with a Rare Disease (PLWRD). Over 300 million people worldwide live with one of over 6,000 identified rare diseases. Rare diseases are often chronic, complex, disabling and life threatening. Persons and families living with a rare disease confront
+ Read More

Free

Call for a UN Resolution on Persons Living with a Rare Disease and their Families

worldwide/virtual

The global rare disease community is calling for a UN Resolution Addressing the Needs of Persons and Families Living with a Rare Disease (PLWRD). Over 300 million people worldwide live with one of over 6,000 identified rare diseases. Rare diseases are often chronic, complex, disabling and life threatening. Persons and families living with a rare disease confront
+ Read More

Free

On the road towards COVID-19 recovery and delivery of the SDGs: Addressing the challenges of persons living with a rare disease as a human rights, sustainable development and equity priority

worldwide/virtual

On the road towards COVID-19 recovery and delivery of the SDGs: Addressing the challenges of persons living with a rare disease as a human rights, sustainable development and equity priority Overview: The 300 million persons living with a rare disease around the world and their families face common challenges in all aspects of their daily
+ Read More

Free

On the road towards COVID-19 recovery and delivery of the SDGs: Addressing the challenges of persons living with a rare disease as a human rights, sustainable development and equity priority

worldwide/virtual

On the road towards COVID-19 recovery and delivery of the SDGs: Addressing the challenges of persons living with a rare disease as a human rights, sustainable development and equity priority Overview: The 300 million persons living with a rare disease around the world and their families face common challenges in all aspects of their daily
+ Read More

Free