ableism

Call for a UN Resolution on Persons Living with a Rare Disease and their Families

The global rare disease community is calling for a UN Resolution Addressing the Needs of Persons and Families Living with a Rare Disease (PLWRD).

Over 300 million people worldwide live with one of over 6,000 identified rare diseases. Rare diseases are often chronic, complex, disabling and life threatening. Persons and families living with a rare disease confront a lack of public awareness as well as a paucity of expertise and knowledge of rare diseases, exposing them to greater social, health and economic vulnerability.

To ensure the well-being of persons living with a rare disease, RDI in partnership with EURORDIS and the NGO Committee for Rare Diseases, is a calling a UN Resolution that recognizes the complex needs of persons living with a rare diseases and promotes the human rights and full participation in society of all people.

Register here!

Preliminary Agenda:

  • Welcome from Rare Diseases International
  • Official Rare Disease Day 2021 Video
  • Opening Remarks from the NGO Committee for Rare Diseases
  • Call for a UNGA Resolution on Rare Diseases
  • Testimonies from Person’s Living with a Rare Disease around the world
  • Video – Rare Diseases at the United Nations
  • Panel Discussion: “Why a UN Resolution and Why Now”
  • Message from International Rare Disease Champion
  • UN Member States Support
  • Key take home message and next steps

Key Asks for the UN Resolution on Rare Diseases would include:

1. Inclusion and participation of PLWRD & their families in society and respect of their human rights

2. Improvement of health and social outcomes with the appropriate care and support within existing resources

3. Promotion of national strategies and actions

4. Introduction of rare diseases into UN agencies and programmes

5. Regular reports by the UN Secretariat to monitor the progress on the implementation.

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CoNGO Notes: For more information on the NGO Committee for Rare Diseases, please visit ngocommitteerarediseases.org. For more information on the NGO Committee on the Rights of Indigenous Peoples, please visit facebook.com/NGOCoRIP. For more information on the NGO Committee on Social Development, please visit ngosocdev.org.

IFA Virtual Town Hall l with Dr. Sonia Mukhtar: Psychological Impact of COVID-19 on Older Adults

COVID-19 and Older People Virtual Town Hall Series: A Conversation with Dr. Sonia Mukhtar

COVID-19 has propagated wide-reaching psychosocial impacts on older adults with financial losses being the least of concern. Mass fear of COVID-19 termed as “coronaphobia,” has generated a plethora of psychiatric manifestations. While the pandemic has made the COVID-19 vaccine the focal point, Dr. Sonia Mukhtar’s work on “psychosocial impact of COVID-19 on older adults” revealed the profound impacts the pandemic has had on the mental and physical well-being of older adults.

As the world reflects on the impact that COVID has had on older people in the context of the Decade of Healthy Ageing, advocating for psychosocial crisis prevention and intervention models to foster the abilities of older persons is more important than ever before. During a global pandemic where the needs of older persons need greater attention, attending to psychosocial needs aids to optimize healthy ageing.

Dr. Sonia Mukhtar is a COVID-19 researcher and a former-visiting faculty at University of Management and Technology, Lahore, Pakistan. Dr. Mukhtar’s is certified in Integrative Counseling.

Geneva, Switzerland: 13:00
Lagos, Nigeria: 13:00
New Delhi, India: 17:30
Perth, Australia: 20:00

This town hall will be recorded and streamed live on Facebook – facebook.com/intfedageing – and a recording of the event will be available there afterwards. Further resources are available at: ifa.ngo/ifa-virtual-town-hall-resources

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CoNGO Notes: For more information on the NGO Committee on Ageing-New York, please visit ngocoa-ny.org. For more information on the NGO Committee on Ageing-Vienna, please visit ngoageingvie.org. For more information on the NGO Committee on Ageing-Geneva, please visit ageingcommitteegeneva.org. For more information on the NGO Committee on Intergenerational Solidarity, please email the vice chair at susanneseperson@gmail.com. For more information on the NGO Committee on Mental Health, please visit ngomentalhealth.org.

Strong Families, Strong Society: Policies Supporting Families

The NGO Committee on the Family-New York is pleased to invite you to join us for remarks by Shiraz Mohamed, Former Guyanese Diplomat and CARICOM (Caribbean Community) Lead Negotiator.

Please RSVP by Jan. 27th at 6pm EST to attend at https://forms.gle/z9oqLHfJ8RdVmF8q8

The family at its best is a place of mutual care, encouragement, joy, and collaboration in the shared work of life. Strong families strengthen the fabric of society through providing a stable foundation for childhood development and caring for their members throughout the life course. It is for this reason that international law recognizes that “[t]he family is the natural and fundamental group unit of society and is entitled to protection by society and the State,” (International Covenant on Civil and Political Rights, art. 23(1)). Some national legislatures have decided to prioritize the family in their policies, not in contrast to individual rights but in recognition of the family’s importance for personal development and society as a whole. At this event, Mr. Shiraz Mohamen, Former Guyanese diplomat and CARICOM (Caribbean Community) lead negotiator will discuss Guyana’s family-responsive policies. He will also discuss the negotiation process during the General Assembly, both within CARICOM, and with the entire body. Finally, he will address why Guyana chose to address social policy at the family level, not just the individual level, as well as how pro-family policies gained support both among legislatures and society. Following this, there will be an opportunity for questions.

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CoNGO Notes: For more information on the NGO Committee on the Family-NY, please visit ngofamilyny.org. For more information on the NGO Committee on Intergenerational Solidarity, please email the vice chair at susanneseperson@gmail.com. For more information on the NGO Committee on Children’s Rights-NY, please visit childrightsny.org.

[Regular Meeting] NGO Committee on Ageing-Geneva

The NGO Committee on Ageing-Geneva invites you to attend its virtual meeting. If you are a member of the Committee you will have received the invitation to the meeting, including the virtual link to the meeting.

If you are not yet a member of the Committee and/or interested in its work and meetings, please email the Chair of the Committee, Silvia Perel-Levin ngoageing@gmail.com

On January 26, join via this Zoom link: https://us02web.zoom.us/j/81479132014.  No registration necessary.

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CoNGO Notes: For more information on the NGO Committee on Ageing-Geneva, please visit ageingcommitteegeneva.org. For more information on the NGO Committee on Ageing-New York, please visit ngocoa-ny.org. For more information on the NGO Committee on Ageing-Geneva, please visit ageingcommitteegeneva.org. For more information on the NGO Committee on Intergenerational Solidarity, please email the vice chair at susanneseperson@gmail.com. 

COVID-19 & Older People Virtual Town Hall Series

As the world reflects on the impact that COVID-19 has had on older people in the context of the Decade of Healthy Ageing, advocating for the rights of older persons is more important than ever before. Leadership and solidarity of Member States and civil society at the UN OEWGA (March 29 – 1 April 2021) toward a common agenda and roadmap for a UN Convention on the Rights of Older People is urgently needed.

This town hall takes place at 07:00 am (Eastern Standard Time) on Friday 8 January 2021 (additional time zones below):

Geneva, Switzerland: 13:00
Lagos, Nigeria: 13:00
New Delhi, India: 17:30
Perth, Australia: 20:00

Register here!

This town hall will be recorded and streamed live on Facebook. Should you be unable to participate, a recording will be available on the IFA Facebook page at https://www.facebook.com/intfedageing/ and resources will be available at: https://ifa.ngo/ifa-virtual-town-hall-resources/

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CoNGO Notes: For more information on the NGO Committee on Ageing-Vienna, please visit ngoageingvie.org. For more information on the NGO Committee on Ageing-New York, please visit ngocoa-ny.org. For more information on the NGO Committee on Ageing-Geneva, please visit ageingcommitteegeneva.org.

[UN Observance] World Braille Day

Every year on January 4, the United Nations commemorates World Braille Day.  To learn more and stay apprised of this year’s events, visit https://www.un.org/en/observances/braille-day. To learn more about the Convention on the Rights of Persons with Disabilities and the importance of eradicating ableism, click here.

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CoNGO Notes: For more information on the NGO Committee on Education, Learning, and Literacy, please visit  facebook.com/NGOCELLatUN. For more information on the NGO Committee on Human Rights, please email the co-chairs at bknotts@uua.org and/or bobbinassar@gmail.com. For more information on the NGO Committee on the Rights of the Child, please email the co-chair at marjones@nyc.rr.com.

[UN Observance] Arabic Language Day

Annually on December 18, the United Nations commemorates Arabic Language Day. To learn about why we mark this observance, and how to participate in 2020’s events, check un.org/ar/events/arabiclanguageday/index.shtml.

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CoNGO Notes: For more information on the NGO Committee on Education, Learning, and Literacy, please visit facebook.com/NGOCELLatUN

COVID-19 and Older People: Maximizing the Longevity Dividend

Join IFA for the latest installment of their Virtual Town Hall Series, “COVID-19 and Older People: Maximizing the Longevity Dividend” on Friday, November 20, 2020.

In an environment significantly disrupted by the COVID-19 pandemic, there is an urgency to inform policies and share good practices to re-evaluate the narratives around longevity and ageing. Within this context, Mr. David Sinclair, Director of the International Longevity Centre in the United Kingdom leads a discussion on the future of ageing, and opportunities to equate health with wealth.

This town hall takes place at 7:00 am EST (additional time zones below):

Geneva, Switzerland: 13:00
Lagos, Nigeria: 13:00
New Delhi, India: 17:30
Perth, Australia: 20:00

This town hall will be recorded and streamed live on Facebook. Should you be unable to participate, a recording will be available on the IFA Facebook page.

More information on the world’s ageing population here: https://www.un.org/development/desa/pd/news/world-population-ageing-2020-highlights

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CoNGO Notes: For more information on the NGO Committee on Ageing-New York, please visit ngocoa-ny.org. For more information on the NGO Committee on Ageing-Vienna, please visit ngoageingvie.org. For more information on the NGO Committee on Ageing-Geneva, please visit ageingcommitteegeneva.org. For more information on the NGO Committee on Intergenerational Solidarity, please email the vice chair at susanneseperson@gmail.com.

[WSIS Forum] Digital Inclusion of Older Persons

Digital Inclusion of Older Persons: Harnessing digital technologies to promote the inclusion and well-being of older persons

Tuesday 11 August 2020
14:00-15:00 CEST / 8:00-9:00 EST

Register here: https://bit.ly/3hKJKPV

Background and Objectives

Highlighting the importance of older persons, the World Summit on the Information Society Forum in 2020, for the first time, has dedicated a special track to older persons and ICTs. Technological advances are becoming entrenched in many aspects of our societies and hold the potential to create opportunities towards an inclusive and sustainable development and provide tools to surmount the challenges faced by many to fully participate in the development process. However, where access to ICTs is limited and not inclusive, it can intensify existing inequalities and even create new ones. Both the opportunities and challenges intrinsic to technological progress have been illustrated by the COVID-19 pandemic. 

Available evidence shows that older persons are often among those that do not benefit fully from the potential of ICTs. This session will explore access and inclusion of older persons in technology, discuss the digital divide in this group identifying their main vulnerabilities, reasons and the impact that such divide has on older persons’ participation in society, and provide some examples of successful efforts to promote access and inclusion of older persons.

The event also serves as a springboard to the fifty-ninth session of the Commission for Social Development to be held in February 2021, where the priority theme is “Socially just transition towards sustainable development: The role of digital technologies on social development and well-being of all”.

Opening remarks: Daniela Bas, Director, Division for Inclusive Social Development, DESA

Panel Discussion 

Moderated by: Amine Lamrabat, Associate Public Information Officer, DISD/DES

  • Alison Bryant, Senior Vice President, AARP Research and Lead for Technology Work 
  • Anupam Sibal, Group Director, Medical Services, Apollo Hospitals Enterprise, India (tbc)
  • Heidrun Mollenkopf, German National Association of Senior Citizens’ Organisations 
  • Michael Hodin, CEO of the Global Coalition on Aging
  • Osarieme Omokaro, User Experience Researcher, Google 

Download a copy of this document here. (PDF 358 KB)

#WSIS2020 #OlderPersons | @UN4Ageing 

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CoNGO Notes: For more information on the NGO Committee on Social Development-New York, please visit ngosocdev.org or facebook.com/NGOCSocD. For more information on the NGO Committee on Ageing-NY, please visit www.ngocoa-ny.org.  For more information on the NGO Committee on Ageing-Geneva, please visit ageingcommitteegeneva.org. For more information on the NGO Committee on Ageing-Vienna, please visit ngoageingvie.org.

[Virtual Side Event] Catalysing action at the frontlines to support transformative pathways

HLPF virtual side event: Catalysing action at the frontlines to support communities to achieve transformative pathways in the decade of action, delivery and accountability

Global Call to Action Against Poverty (GCAP)

Co-Organizers: Republic of Korea UN SDG Action Campaign Action for Sustainable Development, CIVICUS, Project Everyone, Save the Children, HelpAge, Action Aid

Register here now: https://sustainabledevelopment.un.org/index.phppage=view&type=20000&nr=7094&menu=2993

This year is the first year of the Decade of Action, but the impact of Covid-19 has led to massively increased challenges to delivery of the promises of transformation, more than 500 civil society groups came together in a Global Day of Solidarity to highlight that we are #StrongerTogether on 22 May. This coalition will consider:

  • Key examples of community groups that are stepping up to deliver the SDGs and respond to the Covid-19 crisis
  • The impact of Covid-19 on the SDGs
  • Lessons learned and opportunities to build grassroots momentum for the Decade of Action

 

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CoNGO Notes: For more information on the NGO Committee on Sustainable Development-Vienna, visit ngocsdvienna.org. For more information on the NGO Committee on Migration, please visit ngo-migration.org. For more information on the NGO Committee on Mental Health, please visit ngomentalhealth.org.

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