global policy

On the road towards COVID-19 recovery and delivery of the SDGs: Addressing the challenges of persons living with a rare disease as a human rights, sustainable development and equity priority

On the road towards COVID-19 recovery and delivery of the SDGs: Addressing the challenges of persons living with a rare disease as a human rights, sustainable development and equity priority

Overview:

The 300 million persons living with a rare disease around the world and their families face common challenges in all aspects of their daily lives. As they experience different levels of vulnerability, they are disproportionally affected by stigma, discrimination and marginalization, within their own social environment and in society at large. Knowledge and information are scarce and expertise is not accessible. Stigma, discrimination, lack of awareness and recognition lead to specific challenges in access to education, healthcare, employment and leisure. The impact is felt throughout their lives, causing increased impoverishment and isolation for individuals and their families. These socioeconomic challenges have been worsened by the current Covid-19 pandemic and will not diminish post-COVID-19 unless specific attention is paid to them. In the context of the decade of action and delivery for sustainable development, it is critical to acknowledge how the specific challenges of persons living with a rare disease are at the heart of the 2030 Agenda and present many synergies with the Sustainable Development Goals (SDGs), including goals 1, 3, 8 and 10, which are under review at the High-Level Political Forum 2021. Persons living with a rare disease therefore require immediate and urgent attention, under the auspices of global and national policies that address their needs and respect their human rights. Indeed, unless persons living with a rare disease are explicitly included we cannot ensure that ‘no one is left behind.’

Objective of the event:

The side-event to the High Level Political Forum 2021 has the objective to showcase how addressing the challenges of persons living with a rare disease, recognizing their rights, needs and priorities, as well as promoting their active participation, and harnessing the opportunities for their inclusion in society is essential to the realisation of the 2030 Agenda and to the sustainable recovery from the COVID-19 pandemic. The rare disease civil society community (represented by the NGO Committee for Rare Diseases, Rare Diseases International and EURORDIS-Rare Diseases Europe) with the support of a number of UN Member States including Spain, Brazil and the State of Qatar, proposes to discuss, at the event, the adoption of a UN General Assembly Resolution that can act as a catalyst and provide a constructive and consensual intergovernmental vision on the issue.

Register here: us02web.zoom.us/webinar/register/WN_06nqC4E0S_ifw75SoKQDiw

Agenda: rarediseasesinternational.org/wp-content/uploads/2021/07/Final-Programme-UN-HLPF-Event.pdf

Concept Note: rarediseasesinternational.org/wp-content/uploads/2021/07/Concept-Note-HLPF-side-event-2021_Persons-rare-diseases_Final.pdf

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CoNGO Notes: For more information on the NGO Committee for Rare Diseases, please visit ngocommitteerarediseases.org. For more information on the NGO Committee on Human Rights, please email the co-chairs at bobbinassar@gmail.com or bknotts@uua.org. For more information on the NGO Committee on Sustainable Development-NY, please visit ngocsd-ny.org. For more information on the NGO Committee on Sustainable Development-Vienna, please visit ngocsdvienna.org.

The Union of Humanity: Bridging Medicine, Music, Technology & Global NGO for Pandemic Recovery {CoNGO President Speaks at this Event}

Join here: https://stufunitedfund.my.webex.com/stufunitedfund.my/j.php?MTID=me2355e3ac7a7db8d2358b2fa2408254b

STUF United Fund (a member of CoNGO), along with The Permanent Mission of Belize to the United Nations and Helping Overcome Obstacles Peru (HOOP), will present a side event on Tuesday July 6th, during the United Nations High-level Political Forum on Sustainable Development.  STUF United Fund is honored to have CoNGO President Dr. Liberato C. Bautista join as one of the speakers.

The UN High-Level Political Forum (HLPF) is an essential platform hosted by the United Nations to follow up and review the 2030 Agenda for Sustainable Development and the Sustainable Development Goals.  The side event is entitled “The Union of Humanity: Bridging Medicine, Music, Technology, and Global NGO Partnership for Pandemic Recovery.”  It will be held in a hybrid format of virtual and in-person conference.  The event includes speeches and Q&A from 6pm to 8pm and live musical performance from 8pm to 8:30pm.

Speakers include:

  • Ms. Han Wu, Co-Artistic Director of the CMS of Lincoln Center (video speech)
  • Rev. Liberato C. Bautista, President of CoNGO (The Conference of Non-Governmental Organizations in Consultative Relationship with the United Nations) “Global NGO Partnership for Pandemic Recovery”
  • Dr. Shang Ju Li, MD, MPH, Senior Director of Monitoring and Evaluation, Americares; Co-Founder, Helping Overcome Obstacles Peru (HOOP) USA and Peru “Challenges and Strategies: Pandemic Recovery from the Perspective of Local NGO”
  • Dr. Alex Chen, MD, PhD, Visiting Professor at Imperial College London, Faculty of Medicine “Global Burden of Disease (GBD), Non-Communicable Disease (NCD), and Digital Solutions”
  • Mr. Michel Lu, Ph.D in Far-East Research from Université Paris VII, retired diplomat “International Medical and Health Cooperation: Challenges and Opportunities”

Online Webex Meeting Number: 182-627-7918, password: hlpf (lower case of HLPF)

Please RSVP to join the in-person meeting at Merkin Concert Hall at the Kaufman Music Center at 129 W 67th St, New York, NY 10023: eventbrite.com/e/stuf-2021-un-high-level-political-forum-side-event-tickets-161241492645

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CoNGO Notes: For more information on the NGO Committee for Rare Diseases, please visit rarediseasesinternational.org. For more information on the NGO Committee on Sustainable Development-NY, please visit ngocsd-ny.org. For more information on the NGO Committee on Sustainable Development-Vienna, please visit ngocsdvienna.org. For more information on the NGO Committee on Financing for Development, please visit ngosonffd.org

Intergovernmental Group of Experts on Consumer Protection Law and Policy [5th session]

The fifth session of the Intergovernmental Group of Experts on Consumer Protection Law and Policy will be held on 5 and 6 July 2021. The session will open at 10 am on Monday, 5 July, in room XIX of the Palais des Nations. The extent of physical and/or virtual participation will depend on the prevailing conditions at the time.

Background and purpose of the meeting:

In line with the agreed conclusions adopted by the Eighth United Nations Conference to Review All Aspects of the Set of Multilaterally Agreed Equitable Principles and Rules for the Control of Restrictive Business Practices (TD/RBP/CONF.9/9), held on 19–23 October 2020, the deliberations at the fifth session of the Intergovernmental Group of Experts will focus on the following topics:

a) Report on the implementation of the United Nations guidelines for consumer protection by member States and relevant stakeholders;

b) Latest developments in legal and institutional frameworks: UNCTAD world consumer protection map;

c) Report of the working groups on consumer product safety: modalities for the prevention of cross-border distribution of unsafe consumer products and on consumer protection in electronic commerce;

d) Report of the working group on modalities of UNCTAD voluntary peer reviews of competition and consumer protection law and policy;

e) Consumer protection needs of vulnerable and disadvantaged consumers in connection with public utilities;

f) Consumer law, policy and regulatory actions in response to and in the aftermath of the COVID-19 pandemic;

g) Voluntary peer review on consumer protection law and policy: Chile;

h) Review of capacity-building on and technical assistance in consumer protection law and policy;

i) Provisional agenda for the sixth session of the Intergovernmental Group of Experts on Consumer Protection Law and Policy;

j) Adoption of the report of the fifth session of the Intergovernmental Group of Experts on Consumer Protection Law and Policy

Written contributions In order to facilitate the deliberations and the informal exchange of experiences and best practices on the topics to be discussed, member States and observers are requested to submit written contributions to the UNCTAD secretariat by Friday, 4 June 2021, to allow participants to prepare themselves for the meeting.

Participation:

This meeting is open to all member States of UNCTAD. Other organizations, including specialized agencies, intergovernmental bodies and non-governmental organizations in the general category may participate as observers. Online registration, at Intergovernmental Group of Experts on Consumer Protection Law and Policy, fifth session, is mandatory for all those wishing to attend the meeting and is required for inclusion in the list of participants. Early registration (before 25 June 2021) is advisable so that timely approval may be received for the issuance of a ground pass to the Palais des Nations. Registration requires uploading an official letter of nomination to represent an organization at this meeting.

For government representatives, a note verbale or an email from the permanent mission concerned in Geneva will suffice. Further enquiries regarding registration should be sent to the UNCTAD secretariat, Intergovernmental Support Service, Palais des Nations, CH-1211 Geneva 10; email: meetings@unctad.org.

Further information and contact details:

Substantive and other inquiries should be addressed to the UNCTAD secretariat, Competition and Consumer Policies Branch; fax: +41 22 917 0044; email: jacqueline.bouvier@unctad.org

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CoNGO Notes: For more information on the NGO Committee on Social Development, please visit ngosocdev.org. For more information on the NGO Committee on Sustainable Development-Vienna, please visit ngocsdvienna.org. For more information on the NGO Committee on Sustainable Development-NY, please visit ngocsd-ny.org. For more information on the NGO Committee on Financing for Development, please visit ngosonffd.org

Beyond UN75: A Roadmap for Inclusive, Networked & Effective Global Governance

The Stimson Center will launch its latest report, “Beyond UN75: A Roadmap for Inclusive, Networked & Effective Global Governance.” The report considers the new kinds of tools, networks, and institutions, combined with enlightened global leadership, required to take forward the twelve commitments at the heart of the UN75 Declaration.

The Stimson Center’s Global Governance, Justice and Security program is pleased to announce its participation at the Academic Council on the United Nations System (ACUNS) Annual Meeting 2021, Toward a Fit for Future UN System (24-26 June). Please register for the conference and join the Stimson Center for this session.

Register here!

Panel Chair

  • Sultan Barakat, Director, Centre for Conflict and Humanitarian Studies, Doha Institute of Graduate Studies

Featured Speakers

  • Richard Ponzio, Senior Fellow and Director, Global Governance, Justice & Governance Program, Stimson Center
  • Joris Larik, Assistant Professor of Comparative, EU, and International Law, Leiden University and Senior Advisor, Stimson Center
  • Cristina Petcu, Research Analyst, Global Governance, Justice & Governance Program, Stimson Center
  • Banou Arjomand, Research Assistant, Global Governance, Justice & Governance Program, Stimson Center

Discussant

  • Mónica Serrano, Research-Professor of International Relations, El Colegio de México

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CoNGO Notes: For more information on the NGO Committee on Disarmament, Peace, and Security, please visit ngocdps.wordpress.com. For more information on the NGO Committee on Social Development, please visit ngosocdev.org.

Global Governance Innovation Network Launch

The Stimson Center, ACUNS, Plataforma CIPÓ, and Leiden University are pleased to announce the launch of a new Global Governance Innovation Network (GGIN). At this ACUNS Annual meeting plenary session, participants will be informed about how they can engage GGIN activities and advance its core mission of bringing together scholars and policymakers to examine and offer solutions to major global governance problems.

The Stimson Center’s Global Governance, Justice and Security program is pleased to announce its participation at the Academic Council on the United Nations System (ACUNS) Annual Meeting 2021, Toward a Fit for Future UN System (24-26 June).

Please register: stimson.org/event/global-governance-innovation-network-launch

Welcome Remarks & GGIN Overview

  • Lise Howard, President, ACUNS, and Professor of Government and Foreign Service, Georgetown University
  • Richard Ponzio, Senior Fellow and Director, Global Governance, Justice & Security Program, Stimson Center

Featured Speakers

  • Ibrahim Gambari, Chief of Staff to Nigerian President Muhammadu Buhari; Founding Chairman, Savannah Centre for Diplomacy, Democracy, and Development; and former UN Under-Secretary-General for Political Affairs and Foreign Minister of Nigeria
  • Marie McAuliffe, Head, Migration Research Division, International Organization for Migration
  • Thomas G. Weiss, Presidential Professor, The Graduate Center, City University of New York, and former President and Executive-Director of ACUNS
  • Joris Larik, Assistant Professor of Comparative, EU, and International Law, Leiden University and Senior Advisor, the Stimson Center

Moderated by

  • Adriana Erthal Abdenur, Co-Founder and Executive-Director, Plataforma CIPÓ

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CoNGO Notes: For more information on the NGO Committee on Social Development, please visit ngosocdev.org. For more information on the NGO Committee on Disarmament, Peace, and Security, please visit ngocdps.wordpress.com. For more information on the NGO Committee on Sustainable Development-Vienna, please visit ngocsdvienna.org. For more information on the NGO Committee on Sustainable Development-NY, please visit ngocsd-ny.org.

Open Virtual Meeting of the IAEG-SDGs

Dear Colleagues,

The United Nations Statistics Division (UNSD) is pleased to announce an open virtual meeting of the Inter-agency and Expert Group on the Sustainable Development Goal Indicators (IAEG-SDGs). The meeting is open to all countries, international and regional agencies and entities, and other stakeholders.

Please visit the event page for more information and kindly register—which includes the opportunity to submit questions for the Q&A session with IAEG-SDG members. Please feel free to share this information with interested colleagues.

Regards,
UNSD

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CoNGO Notes: For more information on the NGO Committee on Sustainable Development-NY, please visit ngocsd-ny.org. For more information on the NGO Committee on Sustainable Development-Vienna, please visit ngocsdvienna.org. For more information on the NGO Committee on Financing for Development, please visit ngosonffd.org.

Abolition 2000, global civil society network for the elimination of nuclear weapons

PNND members, partners and supporters are invited to participate in the annual meeting of Abolition 2000, the global civil society network for the elimination of nuclear weapons.

Abolition 2000 was established in 1995 during the Nuclear Non-Proliferation Treaty Review and Extension Conference. Over 2000 organizations from around the world have endorsed the Abolition 2000 founding statement which outlines a mix of incremental and comprehensive measures to achieve a nuclear-weapon-free world.

Abolition 2000 builds cooperation between civil society and legislators through its partnership with PNND. The Annual Meeting provides an opportunity to share ideas and initiatives, discuss strategy and build cooperation for more effective campaigns and policy actions.

See below for details about the program. Click here to register for the meeting. We invite you to read the PNND Report for the Abolition 2000 meeting. Additionally, in preparation for the annual meeting, Abolition 2000 has interviewed 6 people, from a range of backgrounds in peace and disarmament. They address the theme of the 2021 annual meeting: How do we move from a dysfunctional world to a world free of nuclear weapons? Click here see the interviews: youtube.com/playlist?list=PLNLSpPdpFraCBUmKLTTxP9qTX1vviq3jN

The meeting will be held in two sessions of 90 minutes each:

Session 1: Campaign updates and reports. Strategy discussion on challenges and opportunities to advance nuclear abolition. Introduction of proposals.

Session 2:Discussion of proposals. Abolition 2000 Secretariat report. Fundraising. Affirmation of the Abolition 2000 Coordinating Committee and Global Council. Calendar of upcoming events.

In order to enable participation by organisations and activists around the world, Session 1 will be held twice:
Session 1 (a) is timed to suit participation by those from Asia/Pacific.
Session 1 (b) is timed to suit participation by those from the Americas and Europe.

Click here for more information including the Session times for your location. Click here to register for the meeting.

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CoNGO Notes: For more information on the NGO Committee on Disarmament, Peace, and Security, please visit ngocdps.wordpress.com. For more information on the NGO Committee on Human Rights, please email the co-chairs at bknotts@uua.org or bobbinassar@gmail.com. For more information on the NGO Committee on Social Development, please visit ngosocdev.org.

The Front Line of Change: Women Leaders and the United Nations

Wouldn’t you like to meet the women leaders of today – the ones creating new trends? Women are changing both the United Nations’ and the world’s approach to diplomacy, hunger and food production, the response to the refugee crisis, and much more. They are creating critical policies and partnerships to confront complex and challenging issues.
CTAUN (The Committee on Teaching About the United Nations) invites you to a special presentation featuring women from the United Nations and select NGOs who prove that leadership is a timeless skill that includes both the vision for change and the ability to carry it out. You will hear these dynamic leaders discuss their vision, goals and action steps for confronting current global challenges.
Many influential women will appear. They include:
  • Michelle Bachelet,  The High Commissioner for Human Rights
  • Melissa Fleming, Under-Secretary-General for Global Communications
  • Gillian Sorensen, former Assistant-Secretary-General
  • Ismahane Elouafi, Chief Scientist-The Food and Agriculture Organization

Register here: us02web.zoom.us/webinar/register/WN_2bW4hg5VQt2ZKL6c84zn1w

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CoNGO Notes: For more information on the NGO Committee on the Status of Women-Vienna, please visit ngocswvienna.org. For more information on the NGO Committee on the Status of Women-NY, please visit ngocsw.org. For more information on the NGO Committee on the Status of Women-Geneva, please visit ngocsw-geneva.ch. For more information on the NGO Committee on Education, Learning, and Literacy, please visit facebook.com/NGOCELLatUN.

[UNCTAD15 civil society discussion] Frontier technologies, the digital economy and development

#UNCTAD15 Civil Society Discussion Series

This event is part of a series of online discussions with civil society held in preparation for the UNCTAD15 ministerial conference that will take place in the week of 3 October 2021.

Senior officials from UNCTAD and civil society leaders will discuss issues related to frontier technologies, the digital economy and development. The key issues identified will be reported to member states as part of the intergovernmental preparatory process for UNCTAD15.

The event, which will be opened by Shamika Sirimanne, director of UNCTAD’s division on technology and logistics, is open to the public.

Registration is mandatory: unctad.us17.list-manage.com/subscribe?u=69d5b141e8ba277f176908a58&id=856c168864

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CoNGO Notes: For more information on the NGO Committee on Financing for Development, please visit ngosonffd.org. For more information on the NGO Committee on Sustainable Development-Vienna, please visit ngocsdvienna.org. For more information on the NGO Committee on Sustainable Development-NY, please visit ngocsd-ny.org. For more information on the NGO Committee on Education, Learning, and Literacy, please visit facebook.com/NGOCELLatUN.

The Climate Crisis and Developing Economies: A conversation with the Director of Power Shift Africa

WHAT THE WEST OWES THE REST

The Climate Crisis & Developing Economies: A conversation with Mohamed Adow, Director of Power Shift Africa

President Biden has ushered in the most ambitious climate plan in US history. But his wafer-slim majority in Congress gives him little time to push through his agenda before midterm elections in 18 months. The faith community must push for the realization of scaled up US climate ambition in coming months and years, following COP26 in November and in preparation for decisive 2024 Presidential elections.

Mohamed Adow is an international climate policy expert and ardent advocate for the people of developing nations – who are disproportionately affected by climate change but play almost no role in causing it. Hailing from a pastoralist community in Northern Kenya that faces increasing droughts, Adow’s experience on the frontlines of the climate crisis anchor his work as a voice for those most vulnerable to climate change. He is an outspoken and deeply respected leader among policy makers, NGOs, and the media on Africa and climate justice.

Mohamed is the Founder and Director of Power Shift Africa, a nongovernmental organization and thinktank based in Kenya that he formed in 2018 to mobilize climate action in Africa and shift climate and energy policies to zero carbon.

Join the event here: https://us02web.zoom.us/j/86137939600?from=addon#success

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CoNGO Notes: For more information on the Committee of Religious NGOs at the United Nations, please visit rngos.wordpress.com. For more information on the NGO Committee on Financing for Development, please visit ngosonffd.org. For more information on the NGO Committee on Sustainable Development-NY, please visit ngocsd-ny.org. For more information on the NGO Committee on Sustainable Development-Vienna, please visit ngocsdvienna.org. For more information on the NGO Committee on the Rights of Indigenous Peoples, please visit facebook.com/NGOCoRIP.

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