multilateralism

On the road towards COVID-19 recovery and delivery of the SDGs: Addressing the challenges of persons living with a rare disease as a human rights, sustainable development and equity priority

On the road towards COVID-19 recovery and delivery of the SDGs: Addressing the challenges of persons living with a rare disease as a human rights, sustainable development and equity priority

Overview:

The 300 million persons living with a rare disease around the world and their families face common challenges in all aspects of their daily lives. As they experience different levels of vulnerability, they are disproportionally affected by stigma, discrimination and marginalization, within their own social environment and in society at large. Knowledge and information are scarce and expertise is not accessible. Stigma, discrimination, lack of awareness and recognition lead to specific challenges in access to education, healthcare, employment and leisure. The impact is felt throughout their lives, causing increased impoverishment and isolation for individuals and their families. These socioeconomic challenges have been worsened by the current Covid-19 pandemic and will not diminish post-COVID-19 unless specific attention is paid to them. In the context of the decade of action and delivery for sustainable development, it is critical to acknowledge how the specific challenges of persons living with a rare disease are at the heart of the 2030 Agenda and present many synergies with the Sustainable Development Goals (SDGs), including goals 1, 3, 8 and 10, which are under review at the High-Level Political Forum 2021. Persons living with a rare disease therefore require immediate and urgent attention, under the auspices of global and national policies that address their needs and respect their human rights. Indeed, unless persons living with a rare disease are explicitly included we cannot ensure that ‘no one is left behind.’

Objective of the event:

The side-event to the High Level Political Forum 2021 has the objective to showcase how addressing the challenges of persons living with a rare disease, recognizing their rights, needs and priorities, as well as promoting their active participation, and harnessing the opportunities for their inclusion in society is essential to the realisation of the 2030 Agenda and to the sustainable recovery from the COVID-19 pandemic. The rare disease civil society community (represented by the NGO Committee for Rare Diseases, Rare Diseases International and EURORDIS-Rare Diseases Europe) with the support of a number of UN Member States including Spain, Brazil and the State of Qatar, proposes to discuss, at the event, the adoption of a UN General Assembly Resolution that can act as a catalyst and provide a constructive and consensual intergovernmental vision on the issue.

Register here: us02web.zoom.us/webinar/register/WN_06nqC4E0S_ifw75SoKQDiw

Agenda: rarediseasesinternational.org/wp-content/uploads/2021/07/Final-Programme-UN-HLPF-Event.pdf

Concept Note: rarediseasesinternational.org/wp-content/uploads/2021/07/Concept-Note-HLPF-side-event-2021_Persons-rare-diseases_Final.pdf

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CoNGO Notes: For more information on the NGO Committee for Rare Diseases, please visit ngocommitteerarediseases.org. For more information on the NGO Committee on Human Rights, please email the co-chairs at bobbinassar@gmail.com or bknotts@uua.org. For more information on the NGO Committee on Sustainable Development-NY, please visit ngocsd-ny.org. For more information on the NGO Committee on Sustainable Development-Vienna, please visit ngocsdvienna.org.

The Union of Humanity: Bridging Medicine, Music, Technology & Global NGO for Pandemic Recovery {CoNGO President Speaks at this Event}

Join here: https://stufunitedfund.my.webex.com/stufunitedfund.my/j.php?MTID=me2355e3ac7a7db8d2358b2fa2408254b

STUF United Fund (a member of CoNGO), along with The Permanent Mission of Belize to the United Nations and Helping Overcome Obstacles Peru (HOOP), will present a side event on Tuesday July 6th, during the United Nations High-level Political Forum on Sustainable Development.  STUF United Fund is honored to have CoNGO President Dr. Liberato C. Bautista join as one of the speakers.

The UN High-Level Political Forum (HLPF) is an essential platform hosted by the United Nations to follow up and review the 2030 Agenda for Sustainable Development and the Sustainable Development Goals.  The side event is entitled “The Union of Humanity: Bridging Medicine, Music, Technology, and Global NGO Partnership for Pandemic Recovery.”  It will be held in a hybrid format of virtual and in-person conference.  The event includes speeches and Q&A from 6pm to 8pm and live musical performance from 8pm to 8:30pm.

Speakers include:

  • Ms. Han Wu, Co-Artistic Director of the CMS of Lincoln Center (video speech)
  • Rev. Liberato C. Bautista, President of CoNGO (The Conference of Non-Governmental Organizations in Consultative Relationship with the United Nations) “Global NGO Partnership for Pandemic Recovery”
  • Dr. Shang Ju Li, MD, MPH, Senior Director of Monitoring and Evaluation, Americares; Co-Founder, Helping Overcome Obstacles Peru (HOOP) USA and Peru “Challenges and Strategies: Pandemic Recovery from the Perspective of Local NGO”
  • Dr. Alex Chen, MD, PhD, Visiting Professor at Imperial College London, Faculty of Medicine “Global Burden of Disease (GBD), Non-Communicable Disease (NCD), and Digital Solutions”
  • Mr. Michel Lu, Ph.D in Far-East Research from Université Paris VII, retired diplomat “International Medical and Health Cooperation: Challenges and Opportunities”

Online Webex Meeting Number: 182-627-7918, password: hlpf (lower case of HLPF)

Please RSVP to join the in-person meeting at Merkin Concert Hall at the Kaufman Music Center at 129 W 67th St, New York, NY 10023: eventbrite.com/e/stuf-2021-un-high-level-political-forum-side-event-tickets-161241492645

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CoNGO Notes: For more information on the NGO Committee for Rare Diseases, please visit rarediseasesinternational.org. For more information on the NGO Committee on Sustainable Development-NY, please visit ngocsd-ny.org. For more information on the NGO Committee on Sustainable Development-Vienna, please visit ngocsdvienna.org. For more information on the NGO Committee on Financing for Development, please visit ngosonffd.org

The Union of Humanity: Bridging Medicine, Music, Technology & Global NGO for Pandemic Recovery {CoNGO President Speaks at this Event}

Join here: https://stufunitedfund.my.webex.com/stufunitedfund.my/j.php?MTID=me2355e3ac7a7db8d2358b2fa2408254b

STUF United Fund (a member of CoNGO), along with The Permanent Mission of Belize to the United Nations and Helping Overcome Obstacles Peru (HOOP), will present a side event on Tuesday July 6th, during the United Nations High-level Political Forum on Sustainable Development.  STUF United Fund is honored to have CoNGO President Dr. Liberato C. Bautista join as one of the speakers.

The UN High-Level Political Forum (HLPF) is an essential platform hosted by the United Nations to follow up and review the 2030 Agenda for Sustainable Development and the Sustainable Development Goals.  The side event is entitled “The Union of Humanity: Bridging Medicine, Music, Technology, and Global NGO Partnership for Pandemic Recovery.”  It will be held in a hybrid format of virtual and in-person conference.  The event includes speeches and Q&A from 6pm to 8pm and live musical performance from 8pm to 8:30pm.

Speakers include:

  • Ms. Han Wu, Co-Artistic Director of the CMS of Lincoln Center (video speech)
  • Rev. Liberato C. Bautista, President of CoNGO (The Conference of Non-Governmental Organizations in Consultative Relationship with the United Nations) “Global NGO Partnership for Pandemic Recovery”
  • Dr. Shang Ju Li, MD, MPH, Senior Director of Monitoring and Evaluation, Americares; Co-Founder, Helping Overcome Obstacles Peru (HOOP) USA and Peru “Challenges and Strategies: Pandemic Recovery from the Perspective of Local NGO”
  • Dr. Alex Chen, MD, PhD, Visiting Professor at Imperial College London, Faculty of Medicine “Global Burden of Disease (GBD), Non-Communicable Disease (NCD), and Digital Solutions”
  • Mr. Michel Lu, Ph.D in Far-East Research from Université Paris VII, retired diplomat “International Medical and Health Cooperation: Challenges and Opportunities”

Online Webex Meeting Number: 182-627-7918, password: hlpf (lower case of HLPF)

Please RSVP to join the in-person meeting at Merkin Concert Hall at the Kaufman Music Center at 129 W 67th St, New York, NY 10023: eventbrite.com/e/stuf-2021-un-high-level-political-forum-side-event-tickets-161241492645

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CoNGO Notes: For more information on the NGO Committee for Rare Diseases, please visit rarediseasesinternational.org. For more information on the NGO Committee on Sustainable Development-NY, please visit ngocsd-ny.org. For more information on the NGO Committee on Sustainable Development-Vienna, please visit ngocsdvienna.org. For more information on the NGO Committee on Financing for Development, please visit ngosonffd.org

Breaking the Cycle of Poverty and Hunger: Our Asks

In order to engage with the themes of the HLPF and CSocD60 in 2022, the NGO CSocD is hosting an event to supplement the priority themes of resilience and recovery from Covid-19, addressing multidimensional poverty and hunger. The event is titled ‘Breaking the Cycle of Poverty and Hunger: Our Asks.’

True to the spirit of the Copenhagen Declaration of which this committee is guided by, this online webinar features three grassroots speakers from different continents who will share their unique experiences of poverty and  hunger during or prior to Covid-19 and the solutions they have created or propose to overcome these difficulties. After presenting accounts of their lived experiences, there will be reactions to the presentations by UN agencies and Member States. This will form the basis of an authentic dialogue between diverse voices in society.

Register here!

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CoNGO Notes: For more information on the NGO Committee on Social Development, please visit ngosocdev.org. For more information on the NGO Committee on Financing for Development, please visit ngosonffd.org. For more information on the NGO Committee on Sustainable Development-NY, please visit ngocsd-ny.org. For more information on the NGO Committee on Sustainable Development-Vienna, please visit ngocsdvienna.org

Breaking the Cycle of Poverty and Hunger: Our Asks

In order to engage with the themes of the HLPF and CSocD60 in 2022, the NGO CSocD is hosting an event to supplement the priority themes of resilience and recovery from Covid-19, addressing multidimensional poverty and hunger. The event is titled ‘Breaking the Cycle of Poverty and Hunger: Our Asks.’

True to the spirit of the Copenhagen Declaration of which this committee is guided by, this online webinar features three grassroots speakers from different continents who will share their unique experiences of poverty and  hunger during or prior to Covid-19 and the solutions they have created or propose to overcome these difficulties. After presenting accounts of their lived experiences, there will be reactions to the presentations by UN agencies and Member States. This will form the basis of an authentic dialogue between diverse voices in society.

Register here!

_____________________________________________________________________________________________

CoNGO Notes: For more information on the NGO Committee on Social Development, please visit ngosocdev.org. For more information on the NGO Committee on Financing for Development, please visit ngosonffd.org. For more information on the NGO Committee on Sustainable Development-NY, please visit ngocsd-ny.org. For more information on the NGO Committee on Sustainable Development-Vienna, please visit ngocsdvienna.org

Interfaith dialogue: Independent Dialogue on Faith and Food Systems

We welcome you to an Interfaith dialogue to engage global faith and indigenous communities with the Food Systems Summit process. This co-convened dialogue (UN and faith-based organizations) through shared experiences and learnings underlining shared values and principles, spirituality and beliefs, is an opportunity to promote solidarity and mutual accountability with local communities, stewardship of the environment and sustainability of food systems. Register here!

Discussants:

  • Rev. Nicta M. Lubaale, General Secretary, Organization of African Instituted Churches (Uganda/ Kenya)
  • Mrs. Wallapa van Willenswaard, Innovation Network International INI, International Network of Engaged Buddhists (Thailand)
  • Ms. Debra Boudreaux, Tzu Chi Foundation, (USA) 
  • Mr. Gopal Patel, Bhumi Global (India/ US)
  • Discussants from Indigenous communities

Convenor:  Mr. Andrew Schwartz, Director of Sustainability and Global Affairs, Center For Earth Ethics (USA)

Curator:  Ms. Angeline Munzara, Global Sector Leader, Livelihoods, Global Impact, World Vision International & Member of the Strategy Group- Food For Life Campaign- WCC-EAA (Zimbabwe/ South Africa)

Moderator: Rev. Eugene Cho, President and CEO of Bread for the World (USA)

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CoNGO Notes: For more information on the Committee on Religious NGOs at the United Nations, please visit rngos.wordpress.com. For more information on the NGO Committee on Sustainable Development-NY, please visit ngocsd-ny.org. For more information on the NGO Committee on Sustainable Development-Vienna, please visit ngocsdvienna.org. For more information on the NGO committee on Spirituality, Values, and Global Concerns-NY, please visit csvgc-ny.org.

Interfaith dialogue: Independent Dialogue on Faith and Food Systems

We welcome you to an Interfaith dialogue to engage global faith and indigenous communities with the Food Systems Summit process. This co-convened dialogue (UN and faith-based organizations) through shared experiences and learnings underlining shared values and principles, spirituality and beliefs, is an opportunity to promote solidarity and mutual accountability with local communities, stewardship of the environment and sustainability of food systems. Register here!

Discussants:

  • Rev. Nicta M. Lubaale, General Secretary, Organization of African Instituted Churches (Uganda/ Kenya)
  • Mrs. Wallapa van Willenswaard, Innovation Network International INI, International Network of Engaged Buddhists (Thailand)
  • Ms. Debra Boudreaux, Tzu Chi Foundation, (USA) 
  • Mr. Gopal Patel, Bhumi Global (India/ US)
  • Discussants from Indigenous communities

Convenor:  Mr. Andrew Schwartz, Director of Sustainability and Global Affairs, Center For Earth Ethics (USA)

Curator:  Ms. Angeline Munzara, Global Sector Leader, Livelihoods, Global Impact, World Vision International & Member of the Strategy Group- Food For Life Campaign- WCC-EAA (Zimbabwe/ South Africa)

Moderator: Rev. Eugene Cho, President and CEO of Bread for the World (USA)

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CoNGO Notes: For more information on the Committee on Religious NGOs at the United Nations, please visit rngos.wordpress.com. For more information on the NGO Committee on Sustainable Development-NY, please visit ngocsd-ny.org. For more information on the NGO Committee on Sustainable Development-Vienna, please visit ngocsdvienna.org. For more information on the NGO committee on Spirituality, Values, and Global Concerns-NY, please visit csvgc-ny.org.

[HLPF side event] Stakeholder Group on Ageing presents “COVID-19 Pandemic: A Stress Test of Global Ageing”

SGA Official Side Event at the UN High-level Political Forum

Older persons have been among the first and hardest hit by the COVID-19 pandemic. In many respects the pandemic could be viewed as a test of how prepared/or not Member States are for the rapidly ageing society.

Pandemics disrupt and have the potential to drive change. Only a whole-of-society, whole-of-government approach can respond effectively to the dynamic challenges of this time.

In his report, the UN Secretary-General presented new research on how longevity has the power to transform labour markets, economies and societies. The recently released WHO Global Report on Ageism shows that one in two people hold ageist attitudes towards older people.

This side event will focus on: Health and Long Term Care, Economic Development and Work and Technology in ageist environment during the pandemic

Register here: zoom.us/meeting/register/tJUofuqrrD4rG9XfaonPbRnBxmTDIDOXF4yw

Program

Welcome: Ms. Erica Dhar, Co-Chair, Stakeholder Group on Ageing

Keynote address: Prof. Andrew Scott, Professor of Economics, London Business School

Panel moderator: Dr. Jane Barratt, Secretary General, International Federation on Ageing

5 Minute Lightning Round Interventions

  • H.E. Ms. Barbro Westerholm, Member of Parliament, Sweden
  • Dr. Ad van Berlo, Chief Executive Officer and R&D Manager, Smart Homes
  • Ms. Aura Sevilla, Programme Consultant for South East Asia and Older Workers, Women in Informal Employment: Globalizing and Organizing (WIEGO)
  • Ms. Grace Chan, Business Director, Hong Kong Council of Social Service

Closing remarks: Ms. Amal Abou Rafeh, Chief of the Programme on Ageing Unit, United Nations Department of Economic and Social Affairs (UN DESA)

This event will be available at no cost and a recording will be available following the live event. For more information regarding the programme and speaker biographies please visit ifa.ngo/driving-our-agenda/united-nations.

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CoNGO Notes: For more information on the NGO Committee on Ageing-Vienna, please visit ngoageingvie.org. For more information on the NGO Committee on Ageing-Geneva, please visit ageingcommitteegeneva.org. For more information on the NGO Committee on Ageing-NY, please visit ngocoa-ny.org. For more information on the NGO Committee on Intergenerational Solidarity, please email the vice chair at susanneseperson@gmail.com. 

[HLPF side event] Stakeholder Group on Ageing presents “COVID-19 Pandemic: A Stress Test of Global Ageing”

SGA Official Side Event at the UN High-level Political Forum

Older persons have been among the first and hardest hit by the COVID-19 pandemic. In many respects the pandemic could be viewed as a test of how prepared/or not Member States are for the rapidly ageing society.

Pandemics disrupt and have the potential to drive change. Only a whole-of-society, whole-of-government approach can respond effectively to the dynamic challenges of this time.

In his report, the UN Secretary-General presented new research on how longevity has the power to transform labour markets, economies and societies. The recently released WHO Global Report on Ageism shows that one in two people hold ageist attitudes towards older people.

This side event will focus on: Health and Long Term Care, Economic Development and Work and Technology in ageist environment during the pandemic

Register here: zoom.us/meeting/register/tJUofuqrrD4rG9XfaonPbRnBxmTDIDOXF4yw

Program

Welcome: Ms. Erica Dhar, Co-Chair, Stakeholder Group on Ageing

Keynote address: Prof. Andrew Scott, Professor of Economics, London Business School

Panel moderator: Dr. Jane Barratt, Secretary General, International Federation on Ageing

5 Minute Lightning Round Interventions

  • H.E. Ms. Barbro Westerholm, Member of Parliament, Sweden
  • Dr. Ad van Berlo, Chief Executive Officer and R&D Manager, Smart Homes
  • Ms. Aura Sevilla, Programme Consultant for South East Asia and Older Workers, Women in Informal Employment: Globalizing and Organizing (WIEGO)
  • Ms. Grace Chan, Business Director, Hong Kong Council of Social Service

Closing remarks: Ms. Amal Abou Rafeh, Chief of the Programme on Ageing Unit, United Nations Department of Economic and Social Affairs (UN DESA)

This event will be available at no cost and a recording will be available following the live event. For more information regarding the programme and speaker biographies please visit ifa.ngo/driving-our-agenda/united-nations.

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CoNGO Notes: For more information on the NGO Committee on Ageing-Vienna, please visit ngoageingvie.org. For more information on the NGO Committee on Ageing-Geneva, please visit ageingcommitteegeneva.org. For more information on the NGO Committee on Ageing-NY, please visit ngocoa-ny.org. For more information on the NGO Committee on Intergenerational Solidarity, please email the vice chair at susanneseperson@gmail.com. 

Global Governance Innovation Network Launch

The Stimson Center, ACUNS, Plataforma CIPÓ, and Leiden University are pleased to announce the launch of a new Global Governance Innovation Network (GGIN). At this ACUNS Annual meeting plenary session, participants will be informed about how they can engage GGIN activities and advance its core mission of bringing together scholars and policymakers to examine and offer solutions to major global governance problems.

The Stimson Center’s Global Governance, Justice and Security program is pleased to announce its participation at the Academic Council on the United Nations System (ACUNS) Annual Meeting 2021, Toward a Fit for Future UN System (24-26 June).

Please register: stimson.org/event/global-governance-innovation-network-launch

Welcome Remarks & GGIN Overview

  • Lise Howard, President, ACUNS, and Professor of Government and Foreign Service, Georgetown University
  • Richard Ponzio, Senior Fellow and Director, Global Governance, Justice & Security Program, Stimson Center

Featured Speakers

  • Ibrahim Gambari, Chief of Staff to Nigerian President Muhammadu Buhari; Founding Chairman, Savannah Centre for Diplomacy, Democracy, and Development; and former UN Under-Secretary-General for Political Affairs and Foreign Minister of Nigeria
  • Marie McAuliffe, Head, Migration Research Division, International Organization for Migration
  • Thomas G. Weiss, Presidential Professor, The Graduate Center, City University of New York, and former President and Executive-Director of ACUNS
  • Joris Larik, Assistant Professor of Comparative, EU, and International Law, Leiden University and Senior Advisor, the Stimson Center

Moderated by

  • Adriana Erthal Abdenur, Co-Founder and Executive-Director, Plataforma CIPÓ

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CoNGO Notes: For more information on the NGO Committee on Social Development, please visit ngosocdev.org. For more information on the NGO Committee on Disarmament, Peace, and Security, please visit ngocdps.wordpress.com. For more information on the NGO Committee on Sustainable Development-Vienna, please visit ngocsdvienna.org. For more information on the NGO Committee on Sustainable Development-NY, please visit ngocsd-ny.org.

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