Conference of NGOs

Rare Disease Day 2021

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.

The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.

Explore and participate in events happening around the world in honor of Rare Disease Day here!

The official Rare Disease Day 2021 video is available in 36 languages, kicking off the international patient-led movement that puts rare diseases in the spotlight. 6 continents, 6 portraits, 6 heroes, 6 lives. The official Rare Disease Day video shines a light on the global and wide community of 300 million people and over 6000 rare diseases.

What are Rare Diseases?

There are over 300 million people living with one or more of over 6,000 identified rare diseases around the world1, each supported by family, friends and a team of carers that make up the rare disease community.

Each rare disease may only affect a handful of people, scattered around the world, but taken together the number of people directly affected is equivalent to the population of the world’s third largest country.

Rare diseases currently affect 3.5% – 5.9% of the worldwide population.

72% of rare diseases are genetic whilst others are the result of infections (bacterial or viral), allergies and environmental causes, or are degenerative and proliferative. 70% of those genetic rare diseases start in childhood. A disease defined as rare in Europe when it affects fewer than 1 in 2,000 people.

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CoNGO Notes: For more information on the NGO Committee for Rare Diseases, please visit ngocommitteerarediseases.org

Education for Sustainable Development: A Driver for Building Back Better

Consisting of a briefing session and a panel discussion on the crucial role of Education for Sustainable Development as a key enabler of successful achievement of the SDGs, especially within the context of Building Back Better from the COVID-19 pandemic, this event will provide a platform for participants from the UN Member States, UNESCO, other intergovernmental organizations and academia will engage with audience members.

Register here.

The virtual briefing will bring together Member States, key UN agencies and education experts around 4 objectives:

  • Highlight ways to harness the transformative power of ESD in achieving sustainable societies and sensitize the UN membership on the latest developments and trends;
  • Share the best practices on how ESD can contribute to building back better from the COVID-19 pandemic;
  • Facilitate exchange of good practices and provide a platform for the UN Member States to engage with key UN agencies and leading education experts on advancing ESD and integrating it into education plans and programmes;
  • Provide updates on the preparation and objectives of the upcoming World Conference on ESD.

The briefing session on Education for Sustainable Development is organized by the Group of Friends for Education and Lifelong Learning, as co-chaired by the Permanent Missions of Argentina, Czech Republic, Japan, Kenya and Norway, together with UNESCO.

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CoNGO Notes: For more information on the NGO Committee on Financing for Development, please visit ngosonffd.org. For more information on the NGO Committee on Education, Learning, and Literacy, please visit facebook.com/NGOCELLatUN. For more information on the NGO Committee on Sustainable Development-NY, please visit ngocsd-ny.org. For more information on the NGO Committee on Sustainable Development-Vienna, please visit ngocsdvienna.org.

Adverse Childhood Events: Protecting, Preventing, and Healing

The NGO Committee on the Family New York invites you to attend “Adverse Childhood Events: Protecting, Preventing, and Healing” on Thursday, February 25th, 1pm-2pm EST.

Concept note/background info:

Families around the world strive to provide children with a safe and nurturing home environment to empower their children to thrive. However, many families experience unexpected difficulties and trauma that can negatively influence this home environment. Parents, families, and communities can work to prevent, protect, and heal from these adverse events.

Speakers will present insights from their practical experiences working with parents and families to promote a healthy environment for children to thrive.

Prevent and ProtectSilvia Mazzarelli, Coordinator for Latin America and the Caribbean of the Global Network of Religions for Children (GNRC) and Arigatou International will look specifically at how parents can keep children safe online and prevent any access to harmful material and persons.

Heal – In the unfortunate event of early childhood trauma, Dr. Amanda Costello from the University of Delaware will discuss the Attachment and Biobehavioral Catch-up (ABC) home-visiting parenting program that was developed by Dr. Mary Dozier. This evidence-based program helps caregivers to develop strong relationships with their children through positive feedback on parenting strategies. The program is currently offered in 19 US states and 8 countries.

Following this, there will be an opportunity for questions.

Please RSVP by Feb. 24th at 6pm EST to attend at https://forms.gle/bDVdyoPtM2hoPB5z7.

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CoNGO Notes: For more information on the NGO Committee on the Family-NY, please visit ngofamilyny.org. For more information on the NGO Committee on Children’s Rights-NY, please visit childrightsny.org

Briefing to Civil Society on UNODC Strategy

UNODC has recently launched its new five-year strategy, covering 2021-25. Recognizing that a key to successful implementation of this Strategy will be the expanded use of partnerships with a broad range of stakeholders, the online meeting on February 25th will provide a briefing to Civil Society partners. The briefing will include a presentation of the Strategy by Jean-Luc Lemahieu, Director of the Division for Policy Analysis and Public Affairs (DPA), UNODC and Bo Mathiassen, Deputy Director of the Division for Policy Analysis and Public Affairs (DPA), UNODC. The presentation will be followed by a Question & Answer session for the civil society participants.

Register here!

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CoNGO Notes: For more information on the Alliance of NGOs on Crime Prevention and Criminal Justice, please visit crimealliance.org. For more information on the NGO Committee on Disarmament, Peace, and Security, please visit ngocdps.wordpress.com. For more information on the NGO Committee on Financing for Development, please visit ngosonffd.org

Youth Activist Space: Youth Voices in the MENA Region Under Crisis

In this installation of NGO CSW/NY’s Youth Preparation Series leading up to CSW65, young activists from the Middle East and North Africa region take the mic to share their views on the effects of a multitude of crises on the feminist movements in the region.

Register here!

About the series:

To prepare young people and youth gender equality activists for CSW65, the NGO CSW/NY Youth Leaders & Young Professionals are hosting an event series that will feature virtual spaces for youth to share their voices, experiences, and visions, as well as different trainings and skills workshops.

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CoNGO Notes: For more information on the NGO Committee on the Status of Women-NY, please visit ngocsw.org. For more information on the NGO Committee on the Status of Women-Geneva, please visit ngocsw-geneva.ch. For more information on the NGO Committee on the Status of Women-Vienna, please visit ngocswvienna.org.

Launch of FACTI Panel Final Report

The FACTI Panel is the High Level Panel on International Financial Accountability, Transparency and Integrity for Achieving the 2030 Agenda. It aims to improve the world’s chances of achieving sustainable development by making recommendations that both strengthen current efforts to combat illicit financial flows, and close remaining gaps in the international system.

The FACTI Panel is set to launch its final report at 8:00-10:30 (EST) on Thursday, 25 February 2021. The event will be conducted virtually with simultaneous interpretation for all UN official languages.

All interested participants can register by clicking the registration link below and filling out the form. After registering the FACTI Panel Secretariat will directly send you connection details to attend the launch.

Register here.

Read the FACTI Panel interim report here.

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CoNGO Notes: For more information on the NGO Committee on Financing for Development, please visit ngosonffd.org. For more information on the NGO Committee on Sustainable Development-Vienna, please visit ngocsdvienna.org. For more information on the NGO Committee on Sustainable Development-New York, please visit ngocsd-ny.org.

Policy and systems reforms to Building Back Better and Achieve SDGs Decade of Action in favor of older persons inclusion and rights

The NGO Committee on Ageing calls your attention to  an event hosted by SGA-Africa, UNDESA Programme on Ageing, AUC and UN ECA:

Policy and systems reforms to Building Back Better and Achieve SDGs Decade of Action in favor of older persons inclusion and rights

Meeting access: https://zoom.us/j/91818009876?pwd=L2tqMzRzU3R1T2N2YThlL0dNMURGUT09

Background: The COVID-19 pandemic, like previous crises, continue to exacerbate already existing vulnerabilities, inequalities, and exclusion particularly for population groups that are not sufficiently integrated in public policies and systems like older persons. Older people population group continue to be most affected by the crisis. Building forward better strategies, the Sustainable Development Goals (SDGs) and Agenda 2063 frameworks provides a foundation to significantly transform and strengthen policies and institutional systems at national and regional levels to achieve wellbeing and dignity of older persons to reverse historical trend.

Rational: Reforms of policies and systems to support building forward better and SDGs’ acceleration actions by African governments and development partners must integrate older persons. The perennial lack of reflecting the implication of ageing and older persons rights in policies and supporting systems promotes exclusion, ageism, and discrimination of older persons. SGA-Africa, UNDESA Programme on Ageing, AUC and UN ECA will be hosting a dialogue forum to share and agree on strategies to ensure building forward better and implementation of SDGs’ Decade for Action comprehensively includes older persons. Policy and system reforms that includes older persons capacities and vulnerability will go a long way to achieve wellbeing of people across their life course.

Objectives: The side event seeks to: identify and priorities policy and systems reforms needed to integrate older persons in SDGs and Agenda 2063 implementation and reporting; share and strategies on ways in which policy makers and CSOs must evolve and prioritize to build forward better on issues of ageing and older persons; and increase political support for ageing development and its relevance in the success of SDGs and Agenda 2063 framework.

Program:

Welcome remarks, overview of SGA-Africa and objective of the meeting Roseline Kihumba, Co-chair of SGA-Africa

Opening remarks:

Ms. Masumi Ono, Chief of Social Inclusion and Participation Branch, Division for Inclusive Social Development, United Nations Department of Economic and Social Affairs

Mr. Gideon Rutaremwa, Population Affairs Officer, Gender Poverty and Social Policy Division, Economic Commission for Africa

Progress, learning, challenges and priority in advancing integration of older persons in agenda 2063 and Covid-19 response and recovery programmes – Dr. Jane Marie Ongolo, Head of Division, Social Welfare, Vulnerable Groups, Drug Control and Crime Prevention

Covid-19 responses and impact on the human rights of older persons: integrating human rights and intersecting realities in building forward better – Dr. Claudia Mahler, Independent Expert on the rights of older people, Office of the United Nations High Commissioner for Human Rights

Experience sharing of what is working and gaps in integration of older people in SDGs, regional development agendas, Covid-19 response, and recovery strategies:

National and sub-national – Priscilla Gavi, HelpAge Zimbabwe

Global and continental level – Susan Sumer, IPEA

Discussions on way forward – Roseline Kihumba, SGA-Africa Co-chair

Closing Remarks: Dr. Ogugua Osi-Ogbu

For more information about the side event, please contact, SGA-Africa Co-Chair, Roseline Kihumba (Ms.), International & Regional Policies Coordinator, HelpAge International-Africa Regional Office, Email: roseline.kihumba@helpage.org.

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CoNGO Notes: For more information on the NGO Committee on Ageing-NY, please visit ngocoa-ny.org. For more information on the NGO Committee on Ageing-Vienna, please visit ngoageingvie.org. For more information on the NGO Committee on Ageing-Geneva, please visit ageingcommitteegeneva.org

GCM Objectives Review Series: Establish Mechanisms for the Portability of Social Security Entitlements & Earned Benefits

Migrant Forum in Asia (MFA), the Cross Regional Center for Refugees and Migrants (CCRM) with the Global Research Forum on Diaspora and Transnationalism (GRFDT) and the Civil Society Action Committee  invite you to join another round of discussions on the implementation of the Global Compact on Migration’s Objectives.

On February 23, we’ll focus on GCM Objective 22: Establish mechanisms for the portability of social security entitlements and earned benefits. Watch the livestream on YouTube here!

Read more about the series and view past sessions here.

Read the Civil Society Action Committee’s papers here.

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CoNGO Notes: For more information on the NGO Committee on Migration, please visit ngo-migration.org.

NGO Committee on the Rights of Indigenous Peoples [monthly meeting]

The monthly meeting of the NGO Committee on the Rights of Indigenous Peoples will convene on February 18 from 1:00 – 3:00pm EST. Interested parties and civil society partners are welcome to join.

Agenda:

1. Moment of Silence in Honor of the Lands we are on and the Native Peoples of this land

2. Welcome and Introductions

3. Approval of Agenda

4. Minutes – January 21, 2021 meeting

5. Executive Committee Report

6. Treasurer Report – Dues for 2021

7. Film – Conscience Point

8. Other announcements

Please RSVP – The ZOOM link will be sent out the night before the meeting.

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CoNGO Notes: For more information on the NGO Committee on the Rights of Indigenous Peoples, please visit facebook.com/NGOCoRIP

[NGO CSW-NY] Climate Crisis and Climate Action by and for Women

Climate change presents an unprecedented threat to economies and societies around the world.

The climate crisis burdens all of humanity, but not equally. The world’s poor, the majority of whom are women, are disproportionately affected. To advance workable and equitable solutions on the local, national, and global level, women must continue to serve as change agents – agents of mitigation, adaptation, and prevention of the most serious consequences of climate change.

NGO CSW/NY’s monthly meeting will examine the international situation and map a few examples of solutions that have proven to be successful.

Agenda:

1 – 1:30PM: NGO CSW65 Virtual Forum Updates
Updates from Houry Geudelekian, NGO CSW/NY Chair

1:30 – 3PM: Program
Panel: Moderated by Azadeh Khalili, NGO CSW/NY Communications Secretary

  • Osprey Orielle LakeExecutive Director of WECAN International
  • Mara Dolan, Women’s Environment and Development Organization
  • Divya Mathew, Women Deliver

Small Group Discussions

Closing

Register here!

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CoNGO Notes: For more information on the NGO Committee on the Status of Women-NY, please visit ngocsw.org. For more information on the NGO Committee on the Status of Women-Geneva, please visit ngocsw-geneva.ch. For more information on the NGO Committee on the Status of Women-Vienna, please visit ngocswvienna.org.

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