social services

On the road towards COVID-19 recovery and delivery of the SDGs: Addressing the challenges of persons living with a rare disease as a human rights, sustainable development and equity priority

On the road towards COVID-19 recovery and delivery of the SDGs: Addressing the challenges of persons living with a rare disease as a human rights, sustainable development and equity priority

Overview:

The 300 million persons living with a rare disease around the world and their families face common challenges in all aspects of their daily lives. As they experience different levels of vulnerability, they are disproportionally affected by stigma, discrimination and marginalization, within their own social environment and in society at large. Knowledge and information are scarce and expertise is not accessible. Stigma, discrimination, lack of awareness and recognition lead to specific challenges in access to education, healthcare, employment and leisure. The impact is felt throughout their lives, causing increased impoverishment and isolation for individuals and their families. These socioeconomic challenges have been worsened by the current Covid-19 pandemic and will not diminish post-COVID-19 unless specific attention is paid to them. In the context of the decade of action and delivery for sustainable development, it is critical to acknowledge how the specific challenges of persons living with a rare disease are at the heart of the 2030 Agenda and present many synergies with the Sustainable Development Goals (SDGs), including goals 1, 3, 8 and 10, which are under review at the High-Level Political Forum 2021. Persons living with a rare disease therefore require immediate and urgent attention, under the auspices of global and national policies that address their needs and respect their human rights. Indeed, unless persons living with a rare disease are explicitly included we cannot ensure that ‘no one is left behind.’

Objective of the event:

The side-event to the High Level Political Forum 2021 has the objective to showcase how addressing the challenges of persons living with a rare disease, recognizing their rights, needs and priorities, as well as promoting their active participation, and harnessing the opportunities for their inclusion in society is essential to the realisation of the 2030 Agenda and to the sustainable recovery from the COVID-19 pandemic. The rare disease civil society community (represented by the NGO Committee for Rare Diseases, Rare Diseases International and EURORDIS-Rare Diseases Europe) with the support of a number of UN Member States including Spain, Brazil and the State of Qatar, proposes to discuss, at the event, the adoption of a UN General Assembly Resolution that can act as a catalyst and provide a constructive and consensual intergovernmental vision on the issue.

Register here: us02web.zoom.us/webinar/register/WN_06nqC4E0S_ifw75SoKQDiw

Agenda: rarediseasesinternational.org/wp-content/uploads/2021/07/Final-Programme-UN-HLPF-Event.pdf

Concept Note: rarediseasesinternational.org/wp-content/uploads/2021/07/Concept-Note-HLPF-side-event-2021_Persons-rare-diseases_Final.pdf

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CoNGO Notes: For more information on the NGO Committee for Rare Diseases, please visit ngocommitteerarediseases.org. For more information on the NGO Committee on Human Rights, please email the co-chairs at bobbinassar@gmail.com or bknotts@uua.org. For more information on the NGO Committee on Sustainable Development-NY, please visit ngocsd-ny.org. For more information on the NGO Committee on Sustainable Development-Vienna, please visit ngocsdvienna.org.

Breaking the Cycle of Poverty and Hunger: Our Asks

In order to engage with the themes of the HLPF and CSocD60 in 2022, the NGO CSocD is hosting an event to supplement the priority themes of resilience and recovery from Covid-19, addressing multidimensional poverty and hunger. The event is titled ‘Breaking the Cycle of Poverty and Hunger: Our Asks.’

True to the spirit of the Copenhagen Declaration of which this committee is guided by, this online webinar features three grassroots speakers from different continents who will share their unique experiences of poverty and  hunger during or prior to Covid-19 and the solutions they have created or propose to overcome these difficulties. After presenting accounts of their lived experiences, there will be reactions to the presentations by UN agencies and Member States. This will form the basis of an authentic dialogue between diverse voices in society.

Register here!

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CoNGO Notes: For more information on the NGO Committee on Social Development, please visit ngosocdev.org. For more information on the NGO Committee on Financing for Development, please visit ngosonffd.org. For more information on the NGO Committee on Sustainable Development-NY, please visit ngocsd-ny.org. For more information on the NGO Committee on Sustainable Development-Vienna, please visit ngocsdvienna.org

The Union of Humanity: Bridging Medicine, Music, Technology & Global NGO for Pandemic Recovery {CoNGO President Speaks at this Event}

Join here: https://stufunitedfund.my.webex.com/stufunitedfund.my/j.php?MTID=me2355e3ac7a7db8d2358b2fa2408254b

STUF United Fund (a member of CoNGO), along with The Permanent Mission of Belize to the United Nations and Helping Overcome Obstacles Peru (HOOP), will present a side event on Tuesday July 6th, during the United Nations High-level Political Forum on Sustainable Development.  STUF United Fund is honored to have CoNGO President Dr. Liberato C. Bautista join as one of the speakers.

The UN High-Level Political Forum (HLPF) is an essential platform hosted by the United Nations to follow up and review the 2030 Agenda for Sustainable Development and the Sustainable Development Goals.  The side event is entitled “The Union of Humanity: Bridging Medicine, Music, Technology, and Global NGO Partnership for Pandemic Recovery.”  It will be held in a hybrid format of virtual and in-person conference.  The event includes speeches and Q&A from 6pm to 8pm and live musical performance from 8pm to 8:30pm.

Speakers include:

  • Ms. Han Wu, Co-Artistic Director of the CMS of Lincoln Center (video speech)
  • Rev. Liberato C. Bautista, President of CoNGO (The Conference of Non-Governmental Organizations in Consultative Relationship with the United Nations) “Global NGO Partnership for Pandemic Recovery”
  • Dr. Shang Ju Li, MD, MPH, Senior Director of Monitoring and Evaluation, Americares; Co-Founder, Helping Overcome Obstacles Peru (HOOP) USA and Peru “Challenges and Strategies: Pandemic Recovery from the Perspective of Local NGO”
  • Dr. Alex Chen, MD, PhD, Visiting Professor at Imperial College London, Faculty of Medicine “Global Burden of Disease (GBD), Non-Communicable Disease (NCD), and Digital Solutions”
  • Mr. Michel Lu, Ph.D in Far-East Research from Université Paris VII, retired diplomat “International Medical and Health Cooperation: Challenges and Opportunities”

Online Webex Meeting Number: 182-627-7918, password: hlpf (lower case of HLPF)

Please RSVP to join the in-person meeting at Merkin Concert Hall at the Kaufman Music Center at 129 W 67th St, New York, NY 10023: eventbrite.com/e/stuf-2021-un-high-level-political-forum-side-event-tickets-161241492645

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CoNGO Notes: For more information on the NGO Committee for Rare Diseases, please visit rarediseasesinternational.org. For more information on the NGO Committee on Sustainable Development-NY, please visit ngocsd-ny.org. For more information on the NGO Committee on Sustainable Development-Vienna, please visit ngocsdvienna.org. For more information on the NGO Committee on Financing for Development, please visit ngosonffd.org

Roundtable on the United Nations’ Role with regards to the Dangers of Anocratic States

This roundtable, co-hosted by the Center on Governance through Human Rights and the Stimson Center, will discuss how and why anocratic states have become the “new normal.” Studies and research on democracy often focuses on two political regimes: democracy and autocracy. Register here!

Chair

  • Gabriel Amvane, Vice President and Director, French Office for the Protection of Refugees and Stateless People (OFPRA)

Participants

  • Anja Mihr, Program Director, Center on Governance through Human Rights
  • Richard Ponzio, Senior Fellow and Director, Global Governance, Justice & Governance Program, Stimson Center
  • John-Mark Iyi, Associate Professor, University of the Western Cape
  • Kseniya Kizilova, Head of Secretariat, World Values Survey Association
  • James Kim, Research Fellow, Asan Institute for Policy Studies
  • Daisaku Higashi, Professor, Center for Global Education and Discovery, Sophia University

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CoNGO Notes: For more information on the NGO Committee on Disarmament, Peace, and Security, please visit  ngocdps.wordpress.com. For more information on the NGO Committee on Human Rights, please email the co-chairs at bobbinassar@gmail.com or bknotts@uua.org. For more information on the NGO Committee on Migration, please visit ngo-migration.org

National Dialogue on the Elimination of Violence and Harassment in the World of Work in Nepal

As part of Global Action Week to promote the ratification of the Convention No. 190 on violence and harassment, and on the occasion of two-year anniversary of the adoption of ILO Convention 190 (C190) on Violence and Harassment in the World of Work, a National Dialogue on the Elimination of Violence and Harassment in the World of Work in Nepal will be organized on 25 June 2021.

At the event, key findings from a study on violence and harassment in the world of work in the health sector in Nepal will be presented, followed by experience sharing from the key stakeholders in the health sector which has been overburdened due to the COVID-19 pandemic. The event will also feature key speakers working to eliminate violence and harassment in the world of work to share their efforts around raising awareness on C190 and for its ratification in Nepal.

The event will elicit a call for a renewed commitment and ambitious actions to accelerating progress to prevent, address and end violence and harassment in the world of work for all.

Watch live here: youtube.com/watch?v=ACWzBbnT1qg&ab_channel=InternationalLabourOrganization

Learn more here: ilo.org/global/lang–en/index.htm

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CoNGO Notes: For more information on the NGO Committee on the Status of Women-NY, please visit ngocsw.org. For more information on the NGO Committee on the Status of Women-Geneva, please visit ngocsw-geneva.ch. For more information on the NGO Committee on the Status of Women-Vienna, please visit ngocswvienna.org. For more information on the NGO Committee on Education, Learning, and Literacy, please visit facebook.com/NGOCELLatUN. For more information on the NGO Committee on Social Development, please visit  ngosocdev.org.

World Refugee Day

World Refugee Day 2021 focuses on the power of inclusion.

The shared experience of COVID-19 has showed us that we only succeed if we stand together. We have all had to do our part to keep each other safe and despite the challenges, refugees and displaced people have stepped up.

Given the chance, refugees will continue to contribute to a stronger, safer and more vibrant world. Therefore UNHCR, the UN Refugee Agency’s World Refugee Day campaign this year is calling for the greater inclusion of refugees in health systems, schools and sport. Only by working together can we recover from the pandemic. Together we heal, learn and shine.

Background

Every minute 20 people leave everything behind to escape war, persecution or terror. There are several types of forcibly displaced persons:

Refugees

  • A refugee is someone who fled his or her home and country owing to “a well-founded fear of persecution because of his/her race, religion, nationality, membership in a particular social group, or political opinion”, according to the United Nations 1951 Refugee Convention. Many refugees are in exile to escape the effects of natural or human-made disasters.

Asylum Seekers

  • Asylum seekers say they are refugees and have fled their homes as refugees do, but their claim to refugee status is not yet definitively evaluated in the country to which they fled.

Internally Displaced Persons

  • Internally Displaced Persons (IDPs) are people who have not crossed an international border but have moved to a different region than the one they call home within their own country.

Stateless Persons

  • Stateless persons do not have a recognized nationality and do not belong to any country. Statelessness situations are usually caused by discrimination against certain groups. Their lack of identification — a citizenship certificate — can exclude them from access to important government services, including health care, education or employment.

Returnees

  • Returnees are former refugees who return to their own countries or regions of origin after time in exile. Returnees need continuous support and reintegration assistance to ensure that they can rebuild their lives at home.

To learn more about how/why the UN commemorates this observance, including how the 1951 Refugee Convention and its 1967 Protocol helps protect refugees, explore un.org/en/observances/refugee-day.

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CoNGO Notes: For more information on the NGO Committee on Migration, please visit ngo-migration.org. For more information on the NGO Committee on the Rights of Indigenous Peoples, please visit facebook.com/NGOCoRIP. For more information on the NGO Committee on Human Rights, please email the co-chairs at bobbinassar@gmail.com or bknotts@uua.org. 

Yoga for Health, Healing, and Harmony

Namaste Dear Friends,

The International Day of Yoga Committee at the UN continues to count down to World Yoga Day and our special event which we’re celebrating this year on Saturday, June 19 at 4:30pm (NY-EST).  We are excited to be part of Unity Earth’s World Unity Week and it’s kick-off.  Joining us is special guest, Karuna, Founder Light on Kundalini.  We also have a couple of other surprise guests taking part so it will be a memorable time for us to embrace our inner nature, our heartfelt connection and the power of hope.  All are welcome.
Sending good wishes,
Denise Scotto, Esq
Chair, International Day of Yoga Committee at the UN
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CoNGO Notes: For more information on the NGO Committee on Spirituality, Values, and Global Concerns-NY, please visit csvgc-ny.org. For more information on the NGO Committee on Freedom of Religion or Belief, please visit unforb.org.

[IFA Global Cafe] Conversation w/ Dr. Sara Ulla Díez on the Importance of Evaluation in the Growth of Age-friendly Communities

IFA Global Cafe: In Conversation with Dr. Sara Ulla Díez on the Importance of Evaluation in the Growth of Age-friendly Communities

In 2007, the WHO launched the Age-Friendly Communities (AFCs) initiative to promote a more thoughtful approach to the development of communities that could advance the well-being of individuals of all ages. In recent years, age-friendly communities around the world are meeting new milestones and are turning their attention to the crucial need for evaluation and the establishment of strong evaluative frameworks.

As an experienced research director and statistics advisor, Dr. Sara Ulla Díez has dedicated more than 20 years to evaluation and applied research in health and international cooperation for development.

Register here: https://zoom.us/meeting/register/tJAtcO2orzorHNPE-7lpiPbdhagMCNa4tD2p

This Global Cafe will be recorded and streamed live on Facebook. Should you be unable to participate, a recording will be available on the IFA Facebook page at facebook.com/intfedageing and resources will be available at: ifa.ngo/ifa-virtual-town-hall-resources.

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CoNGO Notes: For more information on the NGO Committee on Ageing-NY, please visit ngocoa-ny.org. For more information on the NGO Committee on Ageing-Vienna, please visit ngoageingvie.org. For more information on the NGO Committee on Ageing-Geneva, please visit ageingcommitteegeneva.org. For more information on the NGO Committee on Education, Learning, and Literacy, please visit facebook.com/NGOCELLatUN.

Barriers, enablers, and solutions for disability inclusive education during the COVID-19 Pandemic

Dear colleagues,

The UNESCO Global Education Monitoring ReportHuman Rights Watch, the World Bank’s Inclusive Education InitiativeInclusion International and its Catalyst for Inclusive Education programme are co-hosting a side event in the framework of the 14th Session of the Conference of States Parties to the UN Convention on the Rights of Persons with Disabilities. The event titled “Barriers, enablers, and solutions for disability inclusive education during the COVID-19 Pandemic” is also co-sponsored by the Italian Government, the Mission of Panamá to the United Nations, the International Disability Alliance, Instituto Jô Clemente and the Brazilian Coalition of Inclusive Education.

We invite you to join us in this side event that will be held on Tuesday 15 June at 8:30am – 9:45am EDT (New York time).

Registration linkhttps://hrworg.zoom.us/webinar/register/WN_Q0kjeYF4SW2AemQBhl7VjA

Speakers:

  • Opening Remarks: Antonio Caponetto, Director of the Office for Policies in favor of persons with disabilities of the Italian Government (Presidency of the Council of Ministers)
  • Moderator: Sue Swenson, President, Inclusion International

Panelists:

  • Gabriela Martinez, Inclusion International Regional Representative (Latin America)
  • Stella Reicher, Inclusion International / Instituto Jô Clemente (Brazil) Self-advocate, Inclusion International (Africa)
  • Karolina Kozik, Human Rights Watch (Italy – inclusive education in practice during COVID-19 example)
  • Charlotte McClain-Nhalpo, World Bank IEI Survey “Learners with Disabilities and COVID-19 School Closures”

Closing Remarks: Manos Antoninis, UNESCO GEM Report

For more information, please find our Guide to the Conference of State Parties 2021 at this link: https://inclusion-international.org/cosp-2021/

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CoNGO Notes: For more information on the NGO Committee on Education, Learning, and Literacy, please visit facebook.com/NGOCELLatUN. For more information on the NGO Committee on Social Development, please visit ngosocdev.org. For more information on the NGO Committee on Children’s Rights-NY, please visit childrightsny.org.

Racial and Environmental Justice: SDGs in Action

Racial and Environmental Justice SDG’s in Action
MeaningfulWorld Annual Mind-Body-Eco-Spirit Festival at The United Nations
RSVP by 31 May to email address: info@meaningfulword.com

Chair: Dr. Ani Kalayjian, Columbia University & ATOP Meaningfulworld

Meditation: Eric Manigian, Buddhist Action Coalition

Speakers:

  • Pastor Daren Jaime, Anchor, Bronxnet Television & Radio
  • Sohayla Eldeeb, Global Outreach Director, Zero Hour

Musical Interlude: Farah Chandu, Willow Interfaith Chorus

Dance Interlude: Ms. Isha Parupudi, Columbia University, United States

Closure: Ubuntu Peace Circle, Heart-to-Heart Circle of Love and Gratitude

Congratulations to the 2021 MeaningfulWorld Ambassadors Diego Bustamante, Rachel Davidovich, Andrew Dolinar, MA, Mary Garcia Ryan, MSW, Mark Imus, BA, Samer Sabbour, Sahib Singh, Mandi Kollmeier, Isha Parupudi, Meira Yasin, PhD

Co-sponsored by: ATOP Meaningfulworld, Armenian Constitutional Rights Protective Center, Armenian General Benevolent Union (AGBU)

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CoNGO Notes: For more information on the NGO Committee on Social Development, please visit ngosocdev.org. For more information on the NGO Committee on Sustainable Development-NY, please visit ngocsd-ny.org. For more information on the NGO Committee on Sustainable Development-Vienna, please visit ngocsdvienna.org

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